We just found out that I was supposed to be doing an annual screening for calcification in the kidneys. I hadn't done any screenings since my son was 8 and we were checking for the Wilms tumors. He is now 16 and we are working on what we think is an unrelated back issue (84 degree kyphosis which requires major surgery for correction). Anyway, the renal Scan shows that he does have calcification in his kidneys. We've been referred to a nephrologist to discuss the test. I think this means he has medullary sponge kidney or MSK. Any other BWS parents of adolescents with this? If so, is there anything you can share with me about it?