Evening all, well a year ago today I was just starting with my tinnitus, after a sudden-ish hearing loss over a few days, I had little idea what absolute misery could be inflicted by ears! Or what dark days lay ahead.
I spent the first few weeks in absolute despair, constantly on the verge of a major panic attack, unable to sit still, concentrate for 5 minutes, sleep or eat, I lost a lot of weight.
As the weeks dragged on and nothing changed, the panic, at least, subsided, life kind of went on, in its altered form, I was 'coping' I suppose, I had to for my kids. But things were very up and down, I was miserable and struggling to imagine the future with this horrendous condition.
Anyway the big turning point for me was finally getting my hearing aids after 9 long months, the moment it went in my ear the T volume turned down by about 90% and I cried. I'm still having plenty of ups and downs, still have bad phases, especially at night times, but the good far outweighs the bad now, there's light at the end of my tunnel. I know that whatever the future holds I can cope.
So I just wanted to post a positive story! Hope some of you guys who are very new to this can find some comfort from it. I won't say I'm at the stage where it doesn't bother me at all just yet but I know, in time, I will get there, and so will you.
P.S I saw a tinnitus councillor at my audiology dept on Friday and she was so helpful. She said 90% of people with hearing loss have significant tinnitus, but in fact everyone has it, most people are just not tuned in to it. She said it's just a part of me now and I have to just accept it's there for good. Simple words that don't mean much when you're in despair but they seemed to resonate with me.
Best wishes to you all -Bev x