Non-CF bronchiectasis - experience wi... - Bronchiectasis Su...

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Non-CF bronchiectasis - experience with surgery?

yesandno
yesandno

Hi, I am 30 and was diagnosed with non-CF bronchiectasis about a year ago. It is limited to two lung segments. I have chronic Pseudomonas infection with productive cough but no other symptoms. I have now started inhalation with 6% NaCl which really helps with chest clearance and am also trying a Pseudomonas eradication therapy, but I am not very optimistic about that. Since my condition is limited to two lung segments I am thinking about getting surgery to remove the lung segments that are affected. I was curious if anyone had experience with surgery and could tell me about their experience. Thank you!

5 Replies
oldestnewest

What is your therapy for getting rid of the pseudomonas? To consider surgery at this stage seems drastic. I think it’s more usual to control the numbers with pseudomonas rather than eradicate it as it has a habit of finding a corner to hide in.

yesandno
yesandno
in reply to Mooka

I am getting Cipro and Tobramycin inhalations as eradication therapy. Surgery has the potential of getting rid of the bronchiectasis once and for all, conservative therapy can only slow down the disease. There are minimally invasive procedures and the lung segments that would get removed are not functional. I think the earlier, the better. I would really be interested to hear from people who had surgery for focal bronchiectasis.

Mooka
Mooka
in reply to yesandno

In that case you would be better posing on the BLF site. I believe there are people on there with Bronchiectasis who have had surgery and some that have refused it. I take it you aren’t based in the uk?

yesandno
yesandno
in reply to Mooka

thank you for your advice! and no, I am not based in the UK.

Mooka
Mooka
in reply to yesandno

It’s another community on HealthUnlocked. healthunlocked.com/communities

Search on this page. It’s the British lung foundation. I hope you get some good advice on here.

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