Hello. I've joined this group in the hope that some of you might be able to shine some light on my Mother's diagnosis.
She was told last year that - on top of a host of other conditions - she has bronchiectasis, but her symptoms don't seem to match the classic ones in traditional definitions.
She gets desperately short of breath, sometimes after minimal exertion (eg just getting off the sofa or even sitting in bed), on an increasingly frequent basis.
Such bad spells are usually accompanied by pain across the top of her stomach/under her ribs.
She does not appear to have the build-up of phlegm and difficulties coughing that most experts usually associate with the condition.
Whenever she has questioned this, she has been told that not every person has those symptoms but that that is what she has.
This may be the case, but as she is now suffering increasingly frequent bouts of near-desperation with her breathing, our family is wondering whether she has a similar - but different - condition that perhaps requires slightly different treatment.
I just wondered whether any of you have a similar absence of the apparently key symptom but are still considered to have bronchiectasis - and whether increasingly severe bouts of breathlessness are among your symptoms.
And, of course, if so, how you deal with it?