Pseudomonas

Well, I met with my pulmonary doctor yesterday. My sputum culture came back showing Rare Pseudomonas. She did tell me that this bug can be treatment resistant and I may have to have at home IV antibiotics. I was started on a regular pill form for now. She was very casual and did not seem concerned about this bug. After going home and googling it, I of course panicked. It appears to be one of the worst bugs someone with Bronchiectasis can get. I did message her last evening. I don’t know if I am overreacting or, reading too much internet information. Anyone familiar with this bug? The Bronchoscopy has been put on the back burner for a few months due to getting good sputum sample. She said we would revisit after a few months.

[him24]

i had pseudomonas grown in urine culture and sensitivity test in 2017. it also showed many antibiotics resistant in sensitivity test.

Pseudomonas isn't a problem to be panicked. But i also suggest you to test your antibiotics sensitivity cause mine was found too resistant. and doctor said to put me on other antibiotics which are sensitive but i thought to consult another doctor and he said very important thing that don't take antibiotics now , antibiotics should be taken only when there is no other option if you take antibiotics at regular intervals, your system gets resistant to it and when you have really need to take antibiotics there will be none left except MDR (multi drug resistance) which is even worse.

He suggested me to do breathing exercises and steam .

i do meditation to keep away from depression.

i have bronchaectasis too and been suffering for long time and i am about 25.

sometimes i feel myself a body of disease cause i have sinusitis too.

how long have you been suffering ?

[Hidden in reply to him24]

Hi! I was diagnosed about six years ago. This is the first time I am really experiencing issues. I’ve been pretty unwell for most of this summer season here in the States. We’ve had a lot of rain and humidity.

It sounds like you’ve suffered most of your life. I’m glad you do meditation. I am just starting to practice it.

I was strongly advised to walk everyday for about 30 minutes. Keeps The mucas loose.

This has been hard to do because I’ve been so tired and, it’s been blazing hot out but, I can go to my gym and use the treadmill.

Thanks for your response. This can be a scary thing to deal with.

Oh, and I have been on antibiotics for minor exasperation’s over the past six years but, not tons.

[Hidden]

I was colonised with Pseudomonas some years ago. I had 14 days in hospital on Tazocin, an IV antibiotic. There are no oral antibiotics that touch it. Afterwardds I had 3 months clearance by nebulizing Colymicin. Was also given Cipro but had to stop that after a few days as it caused Tendonitis. The clearance didn't work and I had bouts of Pseudo over the years, sometimes alone sometimes with Pneumonia (once ended up with sepsis). Thankfully I seem to have been free of it for 3 years. I was trained to treat myself at home, but was usually too ill to do that.

[Hidden in reply to Hidden]

I received a message from my pulmonary dr. this morning. She is still running tests on the sputum sample. It may not be colonized and, If it is treatment resistant, she talked about at home IV use and the possibility of seeing a infectious disease physician.

I will hope for the best. Sounds like you went through a lot but, glad to hear that you are doing well now!

[Mooka in reply to Hidden]

Hi poemsgalore1

Can I ask you did the colymicin work whilst you were using it or did the pseudomonas come back when you stopped?

[Hidden in reply to Mooka]

It came back several times over the years, but not immediately. It was about a year later when it first came back.

[medway-lady]

I had a posative test for MRSA and very nearly died of fright ! lol In fact I've still got it as its a colony infection so sort of dormant. It does have a use as in local hospital they give you a side room.lol And I laugh so I don't cry and worry about it every waking minute. I've been infected since 2016 and still here...... Just to add the local health authority do lung excercise classes and I've just got back ask if your do one as they are good and do work to help the lungs get fitter.

[Hidden in reply to medway-lady]

Well, after Googling it and reading all kinds of terrible things, I messaged my doctor. She responded immediately.

My pseudomonas is not treatment resistant. I am taking strong antibiotics and already on third day, feel better and coughing less. Also, she prescribed nebulizer. We will do another CT scan in two months and then possibly a bronchoscopy. I have to stay off of google. Everyone is different and it does me no good to read some of the information out there.

[medway-lady in reply to Hidden]

I so agree and so glad your feeling better x

[Nillaa]

Hi, I am colonized with pseudomonas but don't have bronchiectasis. Apparently, the scar tissue caused by TB 20 years ago has been colonized with this awful bacteria. I was diagnosed with pseudomonas this winter after a bronchoscopy. Before my diagnosis and since then I have had pneumonia and recurrent infections ( I also have pleurisy with the infections) . I was put on Cipro twice after my first pneumonia and am now on gemifloxacin due to another lung infection, which has caused me to cough violently and I coughed up blood for one or two days, not pleasant. I am so sick of these recurrent infections and have just had my first vaccine against pneumonia (end of August). Apparently I need to get two more plus the flu vaccine. My consultant told me that if in the future after the vaccinations, I still get infections, I should consider having the scar tissue removed surgically, which I think I may.

[Hidden in reply to Nillaa]

It just seems to go on and on for so many people. I am coughing less frequently since taking Levofloxacin for this but, I don’t know if it’s gone or just taking a break. I have chest pain on and off. Due for CT scan soon. Probably have a bronchoscopy if my CT shows no improvement according to my pulmonary doctor. One day at a time.

[Nillaa in reply to Hidden]

Yes, it sadly does go on and on… I felt great in spring/early summer and my cough was completely gone but it came back with a vengeance this time. I have also noticed that whenever I am exposed to air conditioning, I get chest pain/pleurisy and the symptoms come back, so am trying to avoid ACs. I hope the vaccinations will have a positive effect. Wish you all the best with your treatment!

[Hidden in reply to Nillaa]

You too! Hang in there and keep us posted!

[Hidden in reply to Nillaa]

It’s exhausting, isn’t it? I hope you start to feel better. Having the scar tissue removed might help a lot!

[Nillaa in reply to Hidden]

Thank you. Oh yes, it's exhausting and depressing. I'm not working at the moment but want to go back to work soon but am dreading the winter season with work etc.…. I was not considering surgery before because the idea of having the upper lobe of my lung removed seemed scary but now I definitely am considering it because I don't want to be constantly sick and on antibiotics.

[Hidden in reply to Nillaa]

Surgery is scary but, it’s amazing what we will do to feel better and try to take control of our health. (Well, as much as we can)

We all just want to live normal healthy lives.

I’ve been trying to build up my immune system for months. Hopefully when flu season comes, I will get through it unscathed. 😳👍

[Dawnsunny in reply to Hidden]

Hi, please can I ask how you build up your immune system? Something I would like to try and do. 😊