Was diagnosed with hep in prison, then gallstones/gallbladder disease last feb, they told me i would need my gallbladder out, then went on to tell me i had varices n ciarrohsisis as well as the hep.Cos i was under escort at the time ,so they said to give the prison doc the dischsrge sheet n he would do the relevant things. to cut this short, he didnta! i got out end nov and went straight to rehab and found out how serious all this stuff is! The rehab is a T.C and involves a HEAVY scheduled day from 7 in the morning till 8.30 at night. im proper struggling with this at the mo,ive been there 16 wks and i get proper fatigued,also i keep getting confused easily,which im told by the liver nurse is part and parcel of my conditions.i cant take certain painkillers for the chronic pain i get. due to yhe varices i cant take nsaids and also cos of my previous addictions to stuff. im currently getting some good support from a hepc educator away from the rehab but ifeel very isolated and dont feel that some of the staff there,along with the doctor(who is a substance misuse specialist?gp) understand just what ive got going on or my condition. im at the hepatologist again on april 9 and as this will only be my second appt am hoping to find out a bit more stuff.my liver nurse has said to ask about getting referred to either birmingham or newcastle with regards a transplant.all this has proper burnt my head out!does anyone know where i could get other support around the wirral area(birkenhead) but not too late at night as i cant go out after 7 but they will mke an exception if its a proper support group... I live in hope!!?? xx
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