Hepatic Myelopathy

[John56362]

Hi, has anyone ever suffered from Hepatic Myelopathy? It's a rare spinal neurological complication of chronic liver disease that causes progressive weakness and spasticity in the lower limbs.

[BritishLiverTrust14 Moderator]

Dear John56362,

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday 9am to 3pm and Tuesday to Friday 9am to 4pm on 0800 652 7330 excluding bank holidays.

We also facilitate a range of virtual support groups for people in the UK living with a liver condition (and their families and carers). If you would find it helpful to speak to others with shared experience, you can register to join a group here:

britishlivertrust.org.uk/vi...

Best wishes,

British Liver Trust

[ColinH324]

I have what was diagnosed as small fibre neuropathy, by a private neurologist, as I have ongoing issues with numb patches on my legs, burning/shock pain in my feet, numbness and pain in my hands/wrists. This has been ongoing for 15 years and has been gradually getting worse over time.

How was it diagnosed? My head/spine MRIs always came back clear of any damage, did show some small disc bulges, etc. but nothing impinging on nerves in the right areas to explain the symptoms.