Thanks to everyone who replied it is such a comfort to know that others care and know what you are going through. My husband is still in hospital , they have suspended the diuretic medication and he receiving fluids , he has been on rifaximin and lactulose for a number of years and up until recently was managing very well. He also had the TIPS procedure a number of years ago when things went badly wrong. Awaiting outcome of an assessment discussion re transplant ...he was previously on the list but was suspended as he took a mild stroke and then the view changed but hoping and praying we will receive positive news soon.
Encephalopathy is a frightening symptom of liver disease and sadly so many people are quick to judge and medical staff have limited knowledge in this area.
I tried to manage HE by making sure my husband took all his medication...especially lactulose ! in the run up to a bout of HE he would get everything mixed up, made sure he drunk plenty of water, ate a sensible diet ..avoided salt ....ruled out infection .
In the early days it was hard and lonely but good friends have stuck by and supported us .....and laughter does help . Wishing you all the very best 😊