Anxiety, Uncertainty and Insomnia

[Reglathium23]

I’m still coming to terms with the results of my fibroscan and blood tests, which all (in my untrained mind) point toward cirrhosis (Fibroscan CAP 350, 24 kph and ferritin 641 with low caeruloplasmin).

Combined with a host of new pains in my back, shoulder and right chest and abdomen, I’m trying hard not imagine the worst, especially when lying awake at night; my sleeping patterns have gone to hell, though this could be mostly due to the anxiety...

I’ve an appointment to see the hepatologist in a few weeks, so I’m hoping for a real diagnosis, even if I’m dreading it at the same time.

I wanted to say though, I’ve found reading about people’s experiences on these forums gives me hope; just knowing there are others out there dealing with similar issues, and hearing how so many manage to live with this disease.

[BritishLiverTrust14 Moderator]

Dear Reglathium23,

If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 4pm on 0800 652 7330 (excluding bank holidays).

We also facilitate a range of virtual support groups for people living with a liver condition, their families and carers. If you would find it helpful to speak to others with shared experience, you can register to join a group here:

britishlivertrust.org.uk/vi...

Best wishes,

British Liver Trust