Hi, I was diagnosed with CP around 5 year ago , think I had longer , I waited forever to see specialist & when I finally did he told me that I had a blockage in a bile duct he thought he couldn't remove but would admit me . He never did n then covid ! During covid nooone would see me . I lost three stone I was in agony & could get no help . I then had a ct scan which showed a blood clot , portol hypertension & extensive varacies ! I wasn't treated .!!Then in 2021 I went away with partner&grandaughter . I'm from leigh lancs we went to Bedfordshire. Oh I was ill but was determined to go . The eve before travelling I vomited blood! In the sink quite a bit . It's scared me but I wanted to go away . Thought I'd be ignored again ! Anyhow bleeding went worse and was coming from both ends . My granddaughter had noticed I told her if I comit again I'll get help . Next minute washing up bowl almost full . I told my ,then , partner he got the ambulance crew down from the show ground & I was dashed away blues & twos . Had a near fatal bleed . Now the Dr their he was lovely I trusted him so much , still do
Well I emailed my specialist & told him that he had left me to die ! He had !
He was upset n sent a lengthy quite nast email back ... anyhow
Dr Jay at Bedford agreed to continue to treat me . Every month I went to Bedford 3 hours drive . I had banding every month for 8 month! I eventually had a meeting with mcr n agreed to go back .
He swore I didn't have chirrosis & all this wax brought on by my CP complications ( why did I have those) this went on ages conflicting. Eventually Dr Jay stopped emailing, I think mcr complained ...anyhow .. so now 2022,23 & into 24 I'm told no chirrosis . Fibro scans confirmed this n lft test good. Ct scans had already found a blood clot & I was having thinners & reg endoscopies to check vsracies ! In June my bloods went crazy my lft through the roof . Two reading at 400 ..then mu blood sugars went to 100 I was admitted to wigan . Ct scan , mri scan.
Dr said I had NASH ...also now on insulin ( this is secondary to CP) discharged saw my Dr at mcr who dismissed what this Dr had said , oh I started with acities which I havnt had in the 3 year since the bleed.
He said the Dr had wigan had plucked this from the Air ?? What !
Right , I then had another fibro which was a low reading & no chirrosis . I was thrilled ( for years one of my fears has been chirrosis ) having nursed a ex n saw my brother in law suffer & die . Its so cruel n painful !
Last week I get app with hepetology specialist who blurtd out " well your chirrosis is ... id blocked out . I just said I don't have that. Oh he was dver so sorry . He said he thouggt I knew . He proceeds to show me my liver on CT scan n it's shriveled n quite small ! So ?? What's going on .( I thought all along even though its through cp I still have liver problems no matter how its dressed up ) wait for it ,he explains to me a little different from the Dr that let me down . He told me I have a clot . Told him I know . He says No this is a very old clot that's been their a long time and caused this blockage ! It has made itself at home & made channels for my blood to go through ! Hence varacies ! Well you can bet that's the clot that He didn't treat 3 year ago that almost killed then . He then points out the false reading on fibro says I probably had acities ...Ah I didn't coz they checked that day with machine.
I was scared n felt sick I said can a have a new liver
He replied you may need one .
Would I have a biopsy to make it clear once & for all because if I don't have chirrosis I can't have a liver ? He said they would go through my neck vein to get sample ,however, the other specialist said any procedure would be dangerous coz of varacies ! I'm terrified I don't know what's going on . Why the flare up . I havnt drank for 20 years don't smoke ..I don't get it & don't know what to do . Apparently chirrosis is very rare with CP however as I said it's still same symbols.
They was going to remove my gallbladder,early days, then didn't said I'd no stones . In fact I had 5 big ones that have now calcified ! Now they can't remove gallbladder as it's strachey to liver ! Honestly I believe it has been total neglext from the start. Oh I also have a very enlarged splien !
Any advice .. I keep thinking am I on my way out .
I'm dead active , feel fine ..
Dronfield???
Cirhorris of the liver
AIH LIVER DAMAGE
Hubby update, saw Hepatology Registrar 
Lesion of the liver!!! I’m worried about this has anyone had lesion of the liver ? 
Dr. Hid diagnosis of fatty liver...blamed pain on fibromyalgia. Found out by accident.
