daveq67: been diagnosed with... - British Liver Trust

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daveq67

DaveQ67 profile image
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been diagnosed with decompensated cirrhosis in June 23, now compensated.

Been feeling good and healthy again through abstinence and exercise.

got my first follow up US, no comment on Cirrhosis but found polyp in gallbladder.

it’s knocked me now as I felt I was getting there

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DaveQ67
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5 Replies
Oldbits profile image
Oldbits

Hi dave, firstly well done on the abstinence. Hubbie has gall bladder polyps too diagnosed with them 4 years ago. He was decompensated then now compensated. He was told a lot of people have them and dont know as they cause no problems generally. They operate and remove gall bladder if they are over a certain size and you have a problem (I think its more than 10mm but might be wrong) but do not generally remove in a liver patient as liver maybe swollen and liver patients dont clot as quickly, he was told they would only do it if it was really necessary as a liver patient they cant do it keyhole method. He was told this at kings college hospital. His are monitored with his annual scan of his liver and since he started to get better have actually shrunk down to 6, 8.5 and 10mm. He stopped drinking 2 years ago. As everyone is different and every health authority seems to differ you may get a different opinion when you next see your consultant. Hope that info helps a bit.

DaveQ67 profile image
DaveQ67 in reply to Oldbits

I really appreciate your reply Thankyou.

I’ve been extremely positive and got over the initial feeling off doom to be told in my first follow up scan.

Glad to hear your husbands health is improving and that results continue to improve.

I too went from decompensated to compensated and feel healthy. This just knocked me, I haven’t read or heard much of gallbladder polyps with cirrhosis. So thanks again this helps the head knowing others have experienced it and are doing well!

I’m expecting to hear from my consultant soon so here what she says. 🤞

pushthrough profile image
pushthrough

Hello Dave, congratulations on giving up the drinking. Sorry to hear about the polyps but you got through the decompensated state so I have faith in you! This is something I need to look out for too now. I only knew about the gallstones which I have.

DaveQ67 profile image
DaveQ67 in reply to pushthrough

It’s just an added concern when I thought I was going along well.

Can I ask you what the course of action your doctor has taken if you have cirrhosis too. From what I have seen removal of gallbladder is highly variable from doctor to doctor. with the added risks and increase on livers ability to function the concern.

I’ve still not heard anything yet, I’ve always took the stance that no news is good news with the NHS. However I’m very concious of the additional risks now.

pushthrough profile image
pushthrough in reply to DaveQ67

I think because the stones aren’t really large or causing issues yet she hasn’t expressed concern. Kind of a wait and see. I have heard of others getting minimal invasive surgery to address it when the surgery outweighs the cons. I think many try to avoid it because of our blood doesn’t clot well enough to be a routine procedure

I have compensated cirrhosis, diagnosed at 38 from alcohol 41 now.

Initially I was told alcoholic hepatitis no cirrhosis by head gastro at the emergency room after CT. Even though they saw the portal hypertension. Month later discovered an esophageal varix Luckily i stopped drinking after the ER. Was told I would be dead at 40 if I didn’t and he was spot on. Months later the cirrhosis diagnosis came after an mre and fibroscan at a well known clinic. Then miraculously the varices disappeared the following year. Only tell that bit for others who may see this because quitting the booze literally saved my life. I have 0 doubt I would be dead right now if I kept drinking.

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