Saphire hone : I have now been diagnosed... - British Liver Trust

British Liver Trust

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Saphire hone

Saphire-honey4 profile image
4 Replies

I have now been diagnosed with cirrhosis of the liver gallstone and on Wednesday have been told I've polpis been they can't do anything my pain is through the roof and haven't been offered anything stronger I feel as if I'm just being left to my own devices I also have bipolar disorder which is through the roof and also left to myself with this

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Saphire-honey4 profile image
Saphire-honey4
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4 Replies
AyrshireK profile image
AyrshireK

Sorry to hear your care has been so rubbish. If you have cirrhosis then you should now be under the care of a hospital consultant, likewise for your gallstone issues. You should be given 6 monthly ultrasound and 6 monthly bloods as per the NICE guidelines and monitored properly. Not sure what you mean by polpis (typing error perhaps).

Do you have any one who can help you push for the appropriate level of care? Are you under mental health for your bi-polar as they may be able to help because the added anxiety of your physical health condition isn't going to help your bi-polar any.

Katie

Saphire-honey4 profile image
Saphire-honey4 in reply to AyrshireK

I had mental worker called today with no joy I feel as if I've been left in limbo. Sorry its polyps

BritishLiverTrust8 profile image
BritishLiverTrust8ModeratorBritish Liver Trust

Dear Saphire-honey4

If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

Readlots profile image
Readlots

Hi, I’m sorry to hear that you are in pain and feel abandoned. I have 2 suggestions: 1) talk to your GO about what has happened and see if they can support you. 2) talk to PALS (patient advice and liaison service) at your hospital and ask them for help. You shouldn’t be dealing with this on your own

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