ERCP - Failed : Anyone had a failed ERCP... - British Liver Trust

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ERCP - Failed

Anon888 profile image
14 Replies

Anyone had a failed ERCP? The specialist did not manage to put in the stent and will try again later this week.

The whole experience is like Mr Bean but that's another story.

Summary

- relative presented with high bilirubin

- had 3/4 blood tests and still high (in a period of 3 weeks)

- ERCP scheduled - failed

- ERCP pending

The consultant did notice narrowing of the bile duct and during the failed ERCP had tissue to be analysed.

There is talk about doing the procedure for the stent externally.

Is this "percutaneous bilary drainage" ?

The patient in question is unlikely to question the specialist. We're trying best to understand to guide.

Thank you.

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Anon888
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14 Replies
BritishLiverTrust11 profile image
BritishLiverTrust11Moderator

Hello

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

KevinMBG profile image
KevinMBG

Hello, I had that unpleasant experience. After gallbladder removal I started scratching all over my body and they tried to put a stent, but couldn’t. Afterwards the MRI discovered they clipped my bile duct and a vein. So the result was 4 hours surgery of the liver, full open. Hope it doesn’t get anywhere near in your case. All fine now :-)

Contra21 profile image
Contra21 in reply toKevinMBG

Oh my. I had mine removed also. Do the clips stay there forever? Or do they fall off as the wound heals?

KevinMBG profile image
KevinMBG in reply toContra21

I guess these were supposed to be permanent, inside the liver, where the gallbladder was. They probably removed them during the big surgery (the first one was laparo)…

Anon888 profile image
Anon888 in reply toKevinMBG

Thanks for your reply.Luckily 🙏 I'm not the patient.

Patient is now waiting for another ERCP and to see if they can fit the stent if not it'll be surgery.

Never had liver issues in the past and to be frank the consultants don't seem to know why the bile is backing up.

Hope you're doing well.

PeterP54 profile image
PeterP54

Yes I had a couple of "failed" ERCPs. Mine were quite a long time ago (1990s). My first failure was my first ERCP. I woke up part way through to hear the surgeon saying "that looks like the pancreatic duct" and I could hear the machinery humming in the background. It was rescheduled for a different surgeon and hospital. On another occasion a few days after a sphinterotomy I was getting feedback from the consultant. He was reading the post op notes to me and read "performed small...". He said sorry you will have to have another one as I asked for a large one. Then on a third occasion I got an infection that had to be treated with intravenous anti biotics over a week in hospital. Had to cancel the family holiday to USA. Yes the procedure can fail but I hope that techniques have improved, that the sedation is more reliable and the risk of infection is reduced.

Anon888 profile image
Anon888 in reply toPeterP54

Fingers crossed. Thanks for sharing

Pie-eater profile image
Pie-eater

Yeah, they failed to enter the bile duct first attempt, causing swelling. They tried again a few days later after the swelling had gone down. That one was successful for a while but I’ve had a few more since then, currently stent free and hopeful it’s permanently cured.

Anon888 profile image
Anon888 in reply toPie-eater

Thank you.Waited around to speak to specialist and nowhere closer to obtaining the answers we asked for.

Is it us? It appears slightly slapstick.

Pie-eater profile image
Pie-eater in reply toAnon888

I think there was different opinions between two wards as to whether keep trying with the stents or to open me up again and sort it out surgically. Hope your relative gets it sorted.

Anon888 profile image
Anon888 in reply toPie-eater

Update..will try again ERCP if that fails it'll be key hole. What happens to the stent? Is it removed afterwards? Thank you

Pie-eater profile image
Pie-eater in reply toAnon888

The first stent disappeared (down the toilet?). The next one was taken out as it had moved. A longer one was put in but it blocked a side duct so 2 more were put in through the middle of it to anchor it in place. Everything was removed last week and touch wood, everything seems ok so far.

Anon888 profile image
Anon888 in reply toPie-eater

Glad you are ok. It's the unknown isn't it? Here's hoping that ERCP will go well and no need for surgery. At the moment it's still guesswork what's causing the bile to back up.

Thank you for taking the time to reply - as well as not thinking it was a bogus post!

Anon888 profile image
Anon888 in reply toPie-eater

Thanks

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