Transplant assessment

[Chick_atee]

Had my assessment date today and I was expecting a lot of testing to be done.

Sent home and told to reduce furosemide again and carry on as I am. Review again in 6 months.

I was told I wouldn’t survive a transplant now but just to keep going as I am and hope the ascities doesn’t creep up again with the reduced dose.

I think that’s positive but for some reason I’m left wondering if I will be okay. 14 viles of blood were taken today but no other tests.

Has anyone has this experience and how did you feel about it?

Thank you 🙏

[Dogbot]

No thank goodness I didn’t go through that but I feel for you, after taking all that blood leave it to the boys And girls that know what they are doing and they will have you on that bicycle peddling your heart out in no time. Patience and keep doing as they tell you 👍.

Good luck

Stay safe All

Dogbot 🐶🌈Dave

[Chick_atee in reply to Dogbot]

Thanks Dave, appreciate it. Ann.

[Yellowsydney]

When I had my transplant assessment at Addenbrookes I was an inpatient for 3 days, yes bucket loads of blood taken, ct scan, lung function test, x ray, ecg, ultrasound of heart, meetings with all the transplant team, no bicycle test, then told I needed a transplant and was fit enough to withstand the surgery.Go home and build yourself up so that in 6 months you will be fit enough to be accepted, healthy diet, exercise as much as possible.

Hilary

[Chick_atee in reply to Yellowsydney]

Thanks Hillary. Appreciate it. I’m a bit weak for cardio but will try. I’ve a very healthy diet at least. Ann,

[Lavender-Pearl]

Hi lovely, my husband was never pushed back but with a knee replacement needed he wasn’t and still isn’t very mobile. He did go for walks as much as he could put up with the pain and also did things that evolved lifting to improve his arm strength. It all required some lateral thinking with lots of rest breaks. It worked, as over a 3 month period he managed to increase his muscle by nearly 2cm and he was accepted to go onto the transplant list. Within 3 days of that his had his transplant, and that was nearly 6weeks ago. I encourage you to look at what you are able to do and think about how that can be improved to help your muscle strength. Little things can and do help. Wishing you all the best x

[Chick_atee in reply to Lavender-Pearl]

Thanks so much. I appreciate it.

[Shep666]

Hi

Did they say why you wouldn't survive the op and give you help/advice on what to do once home to get in a better position to have the op?

Lots of bloods is very normal at the test - they really go for the whole range 😜

Hope your day to day life is bearable as sixth months can be a long time, hence my question if they have given you goals to try and achieve.

Good luck and stay positive! Easier said than done.

If you need anything then always shout out 👍

[Chick_atee in reply to Shep666]

Thank you. Yes, they said I would not survive the op. No advice was given on excercise. The only advice I was given was to try reducing the deuretics and come back in 6 months.

[Chick_atee in reply to Chick_atee]

….thanks for replying to me 😊