Transplant re assessment

[Charlie-legs]

I have been invited to be re assessed for a transplant . I really need some help with my feelings from anyone with experience because I am lost.

My partner is brilliant but it's all strange. I haven't any family since my parents died and that hurts. I shouldn't moan but I'm scared.x

[BritishLiverTrust3 Administrator British Liver Trust]

Dear Charlie- Legs,

We facilitate a range of virtual support groups for people living with a liver condition (and their families and carers).

If you would find it helpful to speak to others with shared experience, you can register to join a group here

britishlivertrust.org.uk/vi...

Best wishes

British Liver Trust

[Edna14]

Hi Charlie-legs, I can understand how nerve wracking and scary this is for you. I hope our experiences of assessment reassures you.

My husband had an assessment October last year. Before this he was in and out of hospital a lot with complications of decompensated cirrhosis and his assessment was changed from outpatient assessment to an inpatient assessment. The time leading up to the assessment was worrying, but once he was there it was ok. There were lots and lots of tests but he was fine with them all. The staff and consultant were excellent explaining everything clearly and were honest about the findings and result. They found liver cancer too which he wouldn’t have known about if he hadn’t gone for the assessment, and this tipped the balance in favour of a transplant. We found out the results the week after and luckily he was put on the transplant list. He has now received a new liver and is doing exceptionally well.

For me,as his partner, I was in a state of panic not knowing what to expect and dealing with the day to day issues. He was I think in denial with it all. I found the British Liver Trust nurses absolutely brilliant and phoned the helpline a few times. It was very reassurIng speaking to people who knew how I felt. We both also joined the British Liver Trust online group and were able to talk to people who had gone through the assessment as well. That was very reassuring too. I would really recommend their support group and the helpline. It helped us both.

I wish you the very best and hope it all works out well for you.

[Charlie-legs in reply to Edna14]

Thank you for your kind words. I worry about my other half because he is my only support. A lot to come if they say yes but I may have healed enough not to need one. We will see. I also had 2 cancer tumours removed and so far I'm clear of cancer. 🌷 take care 💖

[Charlie-legs in reply to Edna14]

Thank you, first part is over, now to wait for the 2nd. It's my support network, I have my chap and his brother ( single dad of 4 gorgeous very young boys...the. 3 yr old I could eat, he is very funny)My best mate has met a new man and has gone to live with him 110 miles away...I am a fighter. But getting too exhausted. Moan over

🌷x

[Edna14 in reply to Charlie-legs]

Sounds like you have a wonderful partner and his 4 boys to lift you and make you smile. It’s a real shame about your best friend moving away though. Hopefully she will be able to support you but at a distance.

How did the assessment go?

The exhaustion is difficult to manage but don’t be hard on yourself just do what you can do and try not to overstretch yourself and do too much. You are not moaning either.

Try to keep positive and keep fighting! You are doing brilliantly x

[Charlie-legs in reply to Edna14]

Hi. Assessment with a dietitian , heart, lung and liver, checked and now a wait for a phone appointment to see if there's any hope. Fingers crossed. Xxx

[Edna14 in reply to Charlie-legs]

I’m keeping fingers and toes crossed for you. Keep strong you are amazing x

[Beture47]

Hi don't be scared I had a transplant 6.5 years ago age 69I was back at work with in 6 months

I was told it would be like running a marathon and it is sometime the going gets tough then it gets better

I have had 6.6 extra year's

I am so grateful

I am still so well at 74

Life is good

This site will help you

All the best

Xxx

[Charlie-legs in reply to Beture47]

You are a star 🌟 xxxx

[Beture47 in reply to Charlie-legs]

Thank you I do hope a goes well for youXxx

[Beture47 in reply to Beture47]

If your a fighter you will get throughI was a fighter that's why I was passed on for a transplant

I was told there wasn't much hope of one

I was in kings College Hospital

When I was told

I told I was going to get better

That got me on the list

I didn't have long left to live

My liver had collapse in on it's self

I wasn't having any of it

So please fight on

Best wishes

You can do it

Xx

[Charlie-legs in reply to Beture47]

Those words mean alot, thank you x