Met with my consultant this morning & after being on dueretics for over 6 months ascities is not leaving me. I’m weak, extremely fatigued and have lost so much weight
She advised me to stay on dueretics and start medication for portal hypertension to see if that works. Has this been successful for anyone? Back in 2 weeks for a review. All my bloods are going in the right direction but when I asked about MELD calculation etc.. she said she hasn’t calculated it because she would not be treating me any differently to what she is doing. Has anyone else been told this? I read lots of you on this forum listing off and talking about different scores etc but I haven’t got bogged down with this. Should I be?
This is the first time she mentioned sending me to St. Vincent’s in Dublin for transplant assessment. She asked me did I want a referral but that at the moment they would probably send me home so it’s best to see how things go for another while. I’m thinking this is perhaps because of my weight?
Hearing transplant this morning of course has made me worried and I won’t lie, fearful about the whole thing.
Trying to focus on the fact that my son needs me and I want to be around for him for as long as I can. He is peg fed syringes during the day and with a pump at night and I have always been there in his 9 years for him to look after everything medically changing out his peg etc. he’s been through a lot in his 9 years and is doing so well now. Fearful about not being there for him.
Took more bloods from me so I’ll know more hopefully in 2 weeks. Any advice or information welcomed.
The song “one day at a time sweet Jesus” springs to mind funnily enough even though I’m not overly religious but I do have faith. It’s like an old persons song but the lyrics are so true.
portal hypertension gastropathy 
Portal hypertensive gastropathy 
ALD, Cirrhosis, Portal Hypertension, anxiety/stress issues, eating disorder
Portal hypertension & drenching night sweats.
Wonderful News - portal hypertension reversal
