I am new to this site so you will have to bear with me. Contracted Hep A on holiday. When I got home I was rushed to hospital with jaundice and had liver failure, fluid around heart, going into renal failure, ascites. Basically got given a couple of days to live, but with fantastic help from my Consultant, Dr’s, nurses I pulled through. Spent approx 6 weeks in hospital. During this time had lots of scans, tests, meds, etc. Eventually I was thankfully sent home. I was then diagnosed with ALD/Cirrhosis. Sounds contradictive, but it came as a shock, but it didn’t come as a shock.
I haven’t drank a drop of alcohol since... (approx 3 years).. and I never will again.
I don’t want to take prescribed meds and have managed to cut down from 19 tablets a day to just 2 (Consultant was happy with progress)... However, after having my latest MRI and Endoscopy, I have been prescribed Carvedilol for my Portal Hypertension which has now moved to stage 2.
I have been really worried because on approx 5/6 ocassions I have had severe pain in my stomach (between my rib cage), I actually thought I was going to die (and I have a very high pain tolerance level)... Hence why I’ve been put on these tablets. If I’m feeling this pain at stage 2, I’m really scared by what it will be like if one of my blood vessels bursts... (I’ve had issues with blood clotting and nose bleeds, which I’ve had surgery for)
Any advice from anybody would be most welcome.
Apologies for long post, but it’s as short as I can make it.
Kindest regards x