Chronic pain

Headaches, earaches, dry mouth dry, eye's oesophagus pain, stomach and bowel cramps, muscle cramps, testicular atrophy, palmar erythema, avascular necrosis, osteoporosis, yellow diarrhea, and the doctor is moaning at me because I asked for another ultrasound.

[Hidden]

Add painful hiatal hernia and inguinal hernia to the list.

[Hidden]

And bone pain, pain across the whole of the chest.

[gillrich]

Best to phone your consultants secretary oe email I think

[Hidden in reply to gillrich]

I see my doctor yesterday he down nothing for me.

[AyrshireK]

Do you see anyone for your fibromyalgia? This all sounds very fibro related ..... a condition which gets worse with stress.

[Hidden]

No, I was referred to the pain clinic a couple of years ago because my vitamin d levels were low they wouldn't see me, I'm sure I sticked up some blood christmas I'm always in pain when eating.

[BritishLiverTrust1 Partner British Liver Trust]

Would posting in the Fibromyalgia community on Health Unlocked (which you have also used in the past) be helpful?

[Hidden]

I'm sure it's my liver causing it

[AyrshireK in reply to Hidden]

If the symptoms were genuinely coming from your liver you would not have absolutely bob on normal bloods which you've really had for some time now. It would be HIGHLY UNLIKELY that anything liver related would be causing symptoms without being reflected in bloods.

Ok, you've got some fatty liver. BUT, all your symptoms genuinely sound more pain and fibro related. A hiatus hernia can explain some of your upper GI issues and the IBS related to fibromyalgia your lower GI problems.

Have you ever actually read into fibromyalgia properly? Almost every symptom you are displaying can be related to a diagnosis you already have.

Fibromyalgia has many symptoms that tend to vary from person to person. The main symptom is widespread pain.

There may be periods when your symptoms get better or worse, depending on factors such as:

your stress levels

changes in the weather

how physically active you are

See a GP if you think you have fibromyalgia.

Treatment is available to ease some of the symptoms, although it's unlikely they'll ever disappear completely.

Widespread pain

If you have fibromyalgia, one of the main symptoms is likely to be widespread pain.

This may be felt throughout your body, but could be worse in particular areas, such as your back or neck.

The pain is likely to be continuous, although it may be better or more severe at different times.

The pain could feel like:

an ache

a burning sensation

a sharp, stabbing pain

Extreme sensitivity

Fibromyalgia can make you extremely sensitive to pain all over your body, and you may find that even the slightest touch is painful.

If you hurt yourself, such as stubbing your toe, the pain may continue for much longer than it normally would.

You may hear the condition described in the following medical terms:

hyperalgesia – when you're extremely sensitive to pain

allodynia – when you feel pain from something that should not be painful at all, such as a very light touch

You may also be sensitive to things like smoke, certain foods and bright lights.

Being exposed to something you're sensitive to can cause your other fibromyalgia symptoms to flare up.

Stiffness

Fibromyalgia can make you feel stiff. The stiffness may be most severe when you have been in the same position for a long period of time – for example, when you first wake up in the morning.

Fatigue

Fibromyalgia can cause tiredness. This can range from feeling mildly tired to the exhaustion often felt during a flu-like illness.

Severe tiredness (fatigue) may come on suddenly and can drain you of all your energy. If this happens, you may feel too tired to do anything at all.

Poor sleep quality

Fibromyalgia can affect your sleep. You may often wake up tired, even when you have had plenty of sleep.

This is because the condition can sometimes prevent you sleeping deeply enough to refresh you properly.

You may hear this described as non-restorative sleep.

Cognitive problems ('fibro-fog')

Cognitive problems are issues related to mental processes, such as thinking and learning.

If you have fibromyalgia, you may have:

trouble remembering and learning new things

problems with attention and concentration

slowed or confused speech

Headaches

If fibromyalgia has caused you to experience pain and stiffness in your neck and shoulders, you may also have frequent headaches.

These can vary from being mild headaches to severe migraines, and could also involve other symptoms, such as feeling sick.

Irritable bowel syndrome (IBS)

Some people with fibromyalgia also have irritable bowel syndrome (IBS).

IBS is a common digestive condition that causes pain and bloating in your stomach. It can also lead to constipation or diarrhoea.

Other symptoms

Other symptoms you may have if you have fibromyalgia include:

dizziness and clumsiness

feeling too hot or too cold – this is because you're not able to regulate your body temperature properly

an overwhelming urge to move your legs (restless legs syndrome)

tingling, numbness, prickling or burning sensations in your hands and feet (pins and needles, also known as paraesthesia)

in women, unusually painful periods

anxiety

Depression

In some cases, having fibromyalgia can lead to depression.

Depression can cause many symptoms, including:

constantly feeling low

feeling hopeless and helpless

losing interest in the things you usually enjoy

If you think you may be depressed, it's important to get help from a GP or your fibromyalgia healthcare professional, if you have been seeing one.

[Bumpity in reply to AyrshireK]

AyrshireK - This post was amazing for me. Since my 20's (am 67), I have always had nagging health problems but GP's dismissed my aching bones due to my having had childhood rheumatism/arthritis, my IBS to stress, my brain fog to hormones/depression or TIA's, ME to glandular fever and so on. So, on reading your reply to maco100 I've just read about fibromyalgia and aside from my having a high pain threshold, the list of symptoms could have been written by me.

For the first time in all these years I can put a single name to most of my problems instead of reeling off a list. My colleagues used to laugh when I had brain fog as I couldn't remember how to even make my PC work or, I'd be struggling to string a sentence together or have a serious conversation and not remember a word of it, how I alternate from hyper active to feeling wiped out. I shouldn't be happy but having read this I am. Especially as since March last year my health has consistently been poor. I will mention Fibromyalgia to my GP when I next visit.

Thank you AyrshireK you are a star!

[Hidden in reply to AyrshireK]

My gamma gt was 87 then 75 then 83 and the rest were normal and vitamin d was normal

[Hidden]

Thanks for the reply Katie, I spoke to someone on the BLT phone line earlier who said you can have normal bloods,I forgot to mention I vomited blood when I had that drink Xmas time. I'm not sure if was to do with mixing drink with my tablet's or not I'm taking gabapentin for the pain.

[AyrshireK in reply to Hidden]

Normal bloods with compensated liver disease yes, normal bloods with advanced symptoms which you are describing then no.

Sadly with health anxiety we tend to read the snippets of information we want to and hear things which seem to back up your own anxious thoughts. It is highly unlikely for someone with advanced symptoms to have normal bloods since in 'liver failure' that's what it's doing - failing, failing to do it's most important jobs and therefore failing to deal with toxins, produce chemicals in correct amounts and these will all show in deranged bloods.

My hubby has cirrhosis and fairly normal bloods - he's basically asymptomatic apart from his minor HE, fatigue and a few hormonal issues. He has no pain anywhere.

Hiatus Hernia is also a problem you've listed and it's symptoms are:- The symptoms of hiatal hernia are primarily attributed to gastro esophageal reflux disease or movement of stomach acids into the esophagus. Symptoms include:

Heartburn

Chest pain

Bitter or sour taste in the mouth or throat

Stomach pain

Severe chest or abdominal pain accompanied by nausea and/or vomiting, and inability to have proper bowel movements or pass gas (needs - emergency medical attention)

Katie

[Hidden]

Thanks Katie

[Hidden]

From reading a previous post of yours I understand that you are eating very little at the moment because of the pain in your upper abdomen. Have you considered that this is not a liver issue but maybe a pancreas problem? I know that yellow diaorrhea is a possibility with a problem in the pancreas. Also, has coeliac disease been ruled out (bowel issues with wheat and gluten)? With these two suggestions for thought, how about trying to keep a food diary for a while? Jot down every thing that you consume and note down their effects on your body. Also, have you ever taken oemprazole and does it give you any benefit when eating? I am sorry that you are having such a hard time and understand when you have a lot of different health issues all combining to make things miserable that things are tough but keep striving to understand your body, the answers are out there you just have to dig in and keep battling away. You can do this and you will get your answers and you will get a treatment plan to help manage your issues.

[Hidden]

Got my results back from the doctors tested for pancreatitis he said they were negative and I take 2 x 40mg of omeprazole a day, they don't help. I haven't been tested been tested for coeliac disease I do eat a lot of fat free yoghurts