PIP DOWNGRADED ME BACK TO STANDARD ON ... - British Liver Trust

British Liver Trust

38,205 members18,736 posts

PIP DOWNGRADED ME BACK TO STANDARD ON BOTH

golly123 profile image
18 Replies

I have cihrossis. Osteoporosis. Osteopenia. Osteo-arthritis. Fibromyalgia. Fractures Mt back L4-L5 in July 2022 and my right femur at the top in July 2022. I have a titanium rod inserted into my right leg from my knee upwards and screwed into my right hip.

I'm in pain and have problems with my right leg. Still using a crutch. Downgraded my mobility back to standard as they say I can walk more than 20 metres. I use a crutch when I go out and have been referred back to physio again as I'm getting chronic back pain when I walk which is with a crutch when I go out. When out I have to FREQUENTLY sit on a bench due to severe pain. I know where every bench is in town.

Is this right? I now have apparently go to take them to a tribunal.

Written by
golly123 profile image
golly123
To view profiles and participate in discussions please or .
Read more about...
18 Replies
AyrshireK profile image
AyrshireK

Appeal it for sure. Is there no mandatory reconsideration phase before full on appeal. Make sure you explain fully your limitations.

golly123 profile image
golly123 in reply toAyrshireK

Thanks so much for your reply. I asked them to re-consider it on the phone. I provided evidence of re-starting physiotherapy. I sent the physiotherapy letter to them twice which they received it too. They re-considered and have left me on standard for both. They say I can walk 50 metres and I said I go out three times a week. I did say on a good week I go into town three times. I did go out once into town three times to visit a dentist twice and go to my bank. I'm not metric but when I go out I use a crutch.

They have re-considered. I'm waiting for the letter back now. I fractured my spine and have a rod holding my right leg together screwed into my hip. I'm guessing unless one is in a wheelchair which I'm not and pray I never will be - that this battle is over. I am furious. Thanks for your reply. Have a great day. Best wishes Golly

Readlots profile image
Readlots

Hi Golly, I’d suggest talking to your local citizens Advice. They’re brilliant at helping people challenge these decisions. Contact them as soon as possible because there tend to be time limits for this kind of process. Citizens Advice has a high success rate.

golly123 profile image
golly123 in reply toReadlots

Thanks for your reply. I will be ringing them ASAP. Best wishes Golly

Lils2019 profile image
Lils2019

Hi there,

I am pretty sure that the upper tier tribunal ruled on this and it is actually illegal for DWP to downgrade someone from enhanced to standard without them having the evidence in place to prove why they had made that decision, obviously in your case I would doubt that they have this evidence.

Not all Mandatory Reconsiderations are successful and I think stats showed that they turned down 85%, so definitely appeal to the tribunal if needs be, at tribunal nearly 80% of decision’s are overturned in favour of the claimant.

Good luck x

Found it,

Read the bit at the bottom,

They have to consider all the evidence including the previous award and why it was made.

Info
golly123 profile image
golly123 in reply toLils2019

Thanks. I will be looking in to this. Really appreciate you replying x

golly123 profile image
golly123 in reply toLils2019

Hi again..I'm really angry about this. I've been re-referred for physiotherapy as the pain starts soon when I walk (I use a crutch). They got that read and it made no difference. I also started alendronic acid one week after the video assessment which is causing me more issues with feet and ankle swelling. I have osteoarthritis everywhere so it's making it worse.

Do I have to attend the tribunal? Is it like a Court Room where I'm cross examined. And will I be "watched" and spied on while no doubt waiting months and months .

I might post the last paragraph.

Maybe they should change their criteria into we only give out mobility benefit if you are a wheelchair user. Really fed up with this.

Thanks. You are so lovely to have taken the time to reply..my very best wishes. Happy New Year x

AyrshireK profile image
AyrshireK in reply togolly123

My hubby went to tribunal for his first PIP application after scoring zero at face to face assessment. The tribunal is a judge, a doctor and a disability rights worker and they sit behind a big desk with you on the other side. They give you a much fairer hearing than the DWP employed assessor and will give you chance to explain yourself fully and why you think the decision is incorrect. (We got help from council welfare rights officer with hubbies appeal).

The things they seem to have forgotten in your case are the points which say you must be able to do these activities :- safely, to an acceptable standard, repeatedly and in a reasonable time period.

Hubby was awarded enhanced daily living at tribunal and some points for mobility though not enough for an award. At subsequent reapplication/renewal and reassessment this went up to include basic rate mobility.

It sounds like you have a valid reason for your award to be challenged so definitely appeal.

Katie

More information on how they assess at:- gov.uk/government/publicati...

golly123 profile image
golly123 in reply toAyrshireK

Hi Katie. That is extremely helpful. Thanks you so so much. I got divorced last year before i had the fall in July 2021. If i had someone around, they would be having to help me a lot. I have no-one so i just do the best i can. My son comes over and helps out too. My neighbours put my bins out for me - that was taken as communication. The whole thing makes me feel as though these people are superior humans. A bit like Julius Caesar in a way with a thumbs up or a thumbs down. Kind regards Joanna (a.k.a. Golly)

Smokey001 profile image
Smokey001 in reply togolly123

Hi Golly

I know nothing about PIP, so cannot comment, and would not want to it appears a total minefield.

Wheelchair heavens forbid. But would you not benefit from a mobility scooter

To navigate the lions share of a journey, then use additional aids such as a crutch.

There are charitable organisations which can supply a scooter if deemed an appropriate candidate and I suspect you could be considered.

Might be worth a look, probably come to nothing, but still worth a quick call or email.

Mobilitytrust.org.uk

Funded by the national lottery.

3 to 15k awards and ongoing support.

Hope this helps

But overall wish you well and every success

golly123 profile image
golly123 in reply toSmokey001

Thanks Smokey. I've been told to use it before I lose it. Thanks for the advice though. Best wishes Golly

Lils2019 profile image
Lils2019 in reply togolly123

Hi,

My husband attended tribunal twice in 3 years, we both found the panel very nice people, we had a judge, disabled person and a Dr.

At the last one the DWP sent a presenting officer, I thought they might.

We got a solicitor from fightback4justice to represent last time, and they actually awarded for a longer period of time too.

After a few questions, evidence and oral evidence we got sent out whilst they considered the decision, called back in, decision overturned and they asked the PO if they had anything they wanted to say, he said we got the decision wrong, no apology nothing.

The tribunal panel are much nicer and than the accessors, and are very understanding. The whole system is broken, hence why they are overturning such a high number of decisions.

Keep going, keep fighting for what you are entitled to.

Take care x

golly123 profile image
golly123 in reply toLils2019

Thank you. It's so kind of you to take the time to reply. Happy new year to you and your family. Best wishes Golly

Katt12340 profile image
Katt12340 in reply togolly123

Hi, you've had lots of good advice already here but no, you don't have to attend your tribunal. Some people say it's better to go but it's ultimately your choice...you can send as much evidence/paperwork/personal letters/letters from family and friends saying how you struggle etc as you want. They will take it into consideration. Just a heads up you only get 4 weeks to submit your appeal application though, although in most places you can do this online. If you're on Facebook there's a really good support group called A1 benefit support for PIP/ESA/UC that has lots of guidance on submitting an appeal. I am currently awaiting an appeal date myself after being turned down with similar issues and being on the transplant list, so you're not alone.

Hope this helps a little and good luck x

The_Analyst profile image
The_Analyst

Providing you are in distress or pain before the 20m you should still qualify. Its not an on/off thing. My pain starts as soon as I start walking and builds up the further I go. A good consultants letter goes a long way too.

Benwillfred profile image
Benwillfred

Don't hesitate to take them to the tribunal. This is a wicked decision. I actually worked for the DWP helping claimants fill out forms and I know that most appeals are successful . Get all your evidence up together including medical letters etc and if you are not able to get to the office then let them know or use a wheelchair. The problem is that so many claimants give the best case scenarios rather than the worst.

golly123 profile image
golly123 in reply toBenwillfred

Thank you. That is so so lovely of you to take your time and reply. I will be doing something about this. I think I did give him the best case scenario. Things have changed since I had the video assessment too. I'm now on alendronic acid for osteoporosis which is making things worse as in I'm getting side effect such as bone and yet more joint pain. How I prove this I don't know. Thanks for replying. Happy New Year. Best wishes Golly x

OMBRAMAIFU profile image
OMBRAMAIFU in reply togolly123

I wish you the best of luck, golly123 - it must seem sometimes that these decisions really are a matter of 'luck'.

People try to be honest (and stoic!), and in so doing, sometimes get the 'ticks' in the wrong 'boxes'! Points-systems and tick-boxes in a medical setting are only useful as an initial assessment - they don't take into consideration the fact that repeating an action / movement x-number of times might not be sustainable for more than a couple of hours. Nor the effect of the effort involved on the mental and physical 'well-being' of the individual. It seems the tribunal assessment takes a more holistic approach.

... and then there are the good days and the bad days; my partner on a good day can achieve quite a lot... on a bad day, he can hardly function at all!

Not what you're looking for?

You may also like...

Liver Stent/Tips

Hi, I had a tips in May 2022, within 6 weeks it failed and I had urgent surgery to correct it in...
BumbleCat profile image

Sun sea and a +e

Hi everyone, as you know I went to corfu innseptembervand stayed reasonably healthy. Two weeks...
jules45 profile image

Not sure if linked to liver... Help!!

I've posted previously about liver issues but won't go too much into it, I've had MRI 's and have...
tay94 profile image

Back On Spironolactone And Asking For Help

Many of you here know my story: I began drinking again due to stress after losing disability...

Back to Sherlock.....

Tomorrow I go back to the Doc (his name is someone out of Sherlock 🤔) who initially diagnosed my...
Miss_fab profile image

Moderation team

See all

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.