Having a wobble…why won’t they list me?

[Zechariah123]

Diagnosed 15mths ago with heptocelluar carcinoma. Had ablation and TACE, initial 1 2cm is now 4 small ones. I had undiagnosed Hep C forr over 30 years and at times have drank at dangerous levels through university, stressful life events and covid etc. so this has not helped. I have cirrhosis.

I eat healthy, exercise, I’m a healthy weight and don’t drink. The assessment seemed to go very well and it’s been agreed I am a candidate for transplant…but I keep getting told after the next scan or next chemo treatment or lets focus on getting the HepC cleared. Problem is the next scan shows more tumours or one of the TACE treatments failed (artery was damaged with catheter) for example but as far as I know I’m within criteria even previous to these things.

I’ve been doing all I can and everything they tell me. I’m putting on a brave face for my family but I’m wobbling. If I could cry I would but I’m just getting weary and losing hope and energy.

I trust the Drs know what they are doing but just don’t understand why they won’t make a decision.

Think I need a moan as today I climbed a mountain to watch sunrise, I’m pushing myself emotionally and physically but don’t know how much longer I can carry on.

thanks for any insights

[55spenc]

The long road is tiring and you have walked many a mile! Keep your focus, keep the faith! Good luck

[Readlots]

Hi, I don’t know much about transplants but I’m sure the BLT helpline could advise. It’s OK to feel down sometimes and it’s good that you felt able to come on here and post. Sometimes getting those feelings out helps. Good luck, and a virtual hug

[BritishLiverTrust3 Administrator British Liver Trust]

Dear Zechariah123,

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

We also facilitate a range of virtual support groups for people living with a liver condition (and their families and carers).

If you [are in the UK and] would find it helpful to speak to others with shared experience, you can register to join a group here

britishlivertrust.org.uk/vi...

Best wishes

British Liver Trust