On 2.10.22 my consultant confirmed stage 2 NAFL but have biopsy booked for nov 1st as I have yellow eyes, itching beyond belief, have BAM and high blood pressure and bloods just re done the last shower my bilirubin high as always.
mum so fed up of being tired, constant test at hospital and Friday last week after heart scan which shows damage to left side of heart another new diagnosis of heart disease.
Because consultant said he was worried I was past f2 is the reason behind him wanting the biopsy as my symptoms are so high. The pain in liver area is constant and since the 2nd I went on a plant based low carb eating plan my weight isn’t bad but this all started when I lost 11kg at Christmas, then since the plant based diet I’m down 7kg, with having gallbladder out and getting diagnosis of BAM I can’t eat how I’d like as nothing stays in and I cannot handle the meds.
Just feeling so fed up of being exhausted and no one really understands the tiredness, the itching oh and the lovely yellow eyes.
Had anyone else just felt so fed up?! Am I being silly when there are so many other people worse off?
sorry and thanks as always
Written by
Liverfearlacey
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hello there. First off,no your not being silly...the fatigue is affecting your life. I was similar when first diagnosed with cirrhosis....andhaving bad ascites didn't help. And I still dont have the energy I used to...still walk a fair bit though. Just some days have to take things easier...I'm afraid that's how it will be . It's the same regarding appointments....gp,hospital, bloods,....so many, but has to be done. I fully understand the jaundice side of things....I found it embarrassing....but they slowly improved,as liver function did. Although I'm awaiting a consultation with my consultant,as my own bloods when last done,were out of sorts.
It’s awful to moan and to feel down and constantly drained but I’m glad I’m not alone.
I get up every day and swear il have more energy but no luck hahaha
I hope you’re ok? And consultant is good, I feel lucky with my consultants etc but I have 3 children still young and at home and I don’t feel I can openly tell the little family I have what’s going on.
Just doing what I can to help make things right/easier until biopsy and I will continue.
How long have you been suffering with liver problems do you mind me asking?
hello love,its just good sometimes to get things of your chest!!! I fully understand...but you have 3 little ones which makes it abit harder,I'm sure. It's worth alot,when you have a good gp,consultant etc....mine have been good...its just the wait times for appointments,but I know they are under tremendous pressure at the hospitals. I was diagnosed in 2018,with cirrhosis,bad ascites ...jaundice. yes ,a good diet,no drink,,well for me anyway..... keep looking after yourself. Everything takes time,a long time to settle down, regarding liver.
Hi, Chris is right, you’re not being silly. I was diagnosed in 2012 so had it a while. Each time I get a new diagnosis I feel down for a while but then you just get on with things. You learn to pace yourself. It’s OK to be not OK some times. Having liver disease is sh***. Rest when you need to, find short cuts and adjust expectations, and make time/energy to do things that bring you pleasure. Then you’ll start to notice things that make you smile, and you realise you’re OK again. Hang in there. Kirsty
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