hi everyone I put a post on a couple of weeks ago as I'm really struggling with seeing my dad go through this.
He's been fully diagnosed with cirrhosis now. Over the last 3 months He's had numerous LFTs 2 ultrasounds a CT scan. He's booked in for a fibroscan. He has an appointment with hepatology on the 13th September. He was in hospital for 6 days I really had to fight hard to get him help is it because he was an alcoholic? He's now a full month sober the longest time in 40 years. I'm so proud of him. I can't help thinking he is too poorly to recover. His jaundice is really bad now, his HE is absolutely soul destroying for us his family. He is barely eating enough to keep a bird alive. He also had pneumonia we found out from a chest xray in hospital, I thought it was because he must of had varices. He is sleeping TONS. His personality has changed. He's very snappy, not happy, just stares at the TV. I just stare at him with tears running down my cheek. My dad has been a wonderful father to me and he's done his best for me. He's taking lactulose everyday and water tablets. I'm suffering from anxiety and oo depression myself and this is really knocking me for 6 mentally and physically. I'm so sorry for the long rant. I'm just unbelievably sad and depressed.
Thanks for reading. X
Written by
BethForrest
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Im sorry for you. Its an awful lot for you to deal with. First off, its still good that dads not drinking....so well done,not an easy task. Secondly, no it most certainly should not make it more difficult to get your dad help,just because he drank... that is not fair at all,if you feel that it is....you must speak up to who ever you are dealing with. Well you only have until next Tuesday, until you see the hepatologist. That may well give you a much clearer picture.....write questions down before hand...as to what you want to ask them. Assuming that you go with dad to appointments....
Don't forget yourself in all of this...assuming a new born....you will probably be shattered,im sure. Come and have a chat or a rant!! On here. Is he on food supplements? .i was put on ensure plus drinks to build me back up,and increase my muscle mass
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Dear Beth, you’re going through so much and your emotions and hormones will be all over the place. You have no choice but to go with it, it’s like a rollercoaster that you can’t get off, much as you want to. There’s nothing wrong with having a good cry if that’s what you need to do, but also nothing wrong with having a good laugh, and there will be moments of humour in all the darkness. Spend your time and energy on the things and people that matter to you. Anything and anyone else can wait until things are better. Take any help that’s offered and ask for help with practical things like childcare, meals, shopping, housework etc. Family and friends often want to help but don’t know what to do. Having lovearound youmayhelpwithhow you’re feeling too. I know how hard it is watching a parent with cirrhosis - you will get through this. Big hug x
As someone who has experienced this and is still, there is nothing that will make you feel better but, you can try a couple of things.
First call al-anon . They are family and friends of alcoholics and will be a great place for you to try.
Next you have to have some time for you. Even if it is one evening, arrange for another person to be carer for the evening. You need time to process and think, away from the situation.
My last thing would be research. Educate yourself on what to expect or what certain things mean. The unknown is scary but I find it easier to understand what is happening if I’m clued up. Use legitimate sources such as the British liver trust or nhs for research.
This is just what’s helping me, but it’s not easy and you have to allow yourself time to think about it all as well as trying to help.
Also Make sure you are aware of any appointments and have contact details for his consultant so you can call them if something happens.
I really wish you all the best. Please feel free to contact me anytime if you need a chat xx
Hi Beth. So sorry you are going through this but you have done everything for your dear dad. As you say, he has been a great Dad to you but your emotions are understandable to say the least. We all love our parents and it is very difficult for you seeing your Father like this. His drinking unfortunately has placed him in this situation but please don't give up hope for your Dad. Take on board the treasured memories you have had with him and remember the good times please. You must live your life and look after yourself and your children. Take care and never think on the site that you rant - it's always good to release your personal feelings. x
hi. I didn't mean that beth ranted on....you have misread what ive said. I meant that she should feel free to talk,rant,if she felt like ranting...we all feel that at times!!!. Chris
Hi Chris. So sorry if you thought I was having a "dig" at your post. I never intended that I can assure you, we all need to let our inner feelings out at times in whatever way. Please take care.
I agree with Redpoint. When you see the hepatologist that will actually be in charge of his care, that should help sort things. A prognosis, a plan of treatment, ect. Please don't lose hope yet. I was in shape pretty close to what you describe with your dad. 11 days inpatient, partly in ICU. My electrolytes were all low and I slept the majority of several of those days...and barely ate. But...that was over a year ago now and by not drinking, getting my regular testing and diuretics, I'm still here. So please don't despair too much yet. It can get better. Sending you hugs and good thoughts. - Vicki
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