Well day one has been a busy one if a little taxing too. We arrived at Edinburgh at 10am and went up to the ward, no beds available so put into a little lounge along with another chap and his wife (fella was also in for a transplant assessment). Lounge was roasting hot and a bit unpleasant but we all got to know each other then got joined by a family - ladies hubby had got the call at 2.30am to get his transplant (having been listed for a fortnight). It ended up being a good trading of information about what the assessment week would entail and what getting the call would mean. Learned more in the waiting area than we did for much of the day.
Anyway, Hubby had a canula in and we waited a bit, he then got whisked away to 'vascular' where he did the exercise bike test with lung and heart monitoring, also had a heart scan (ultrasound type thing) and an ECG. Chat with transplant co-ordinator (eventually) about what the week would entail. Arterial blood gas taken, swabs of nose, throat and groin (for MRSA etc). Urine test. Met another of the liver consultants who will be doing the ward rounds this week and will be on the final decision panel.
Sadly hubby missed lunch so we had to chase up a sandwich for him, missed the tea trolley on all its passes as we were still in the lounge waiting for a bed. Wasn't offered an evening meal till we pursued it and it was given to him on to eat from his lap in armchair - very uncomfortable. Missed tea trolley again. Still sitting (alone) by now after 5pm in the lounge which was roasting, no drinks offered (had to go chasing all the time). It was a hot and tiring day and hubby generally naps in the afternoon so by tea time he was starting to get a bit frayed and upset so I had to go and politely ask again if a bed had been located for him. We eventually got one and he managed to eat his tea at his bed.
All in all a busy day with the bed issue being a little upsetting, we don't want to moan or be impatient but having a very poorly liver patient in a small, over warm airless lounge with nothing to eat and drink offered (until asked about) was a bit much. Anyway he has a bed now and hopefully things will progress some more tomorrow and he might be able to actually lie down and rest between 'activities'. Basically they come and get you from your bed for the various tests, interviews, procedures etc. whenever they can grab you. He was meant to have a CT Scan this afternoon which hadn't happened by the time I left the hospital (shattered) at 6pm though it may still happen tonight as there is so much to fit into the four days. Should know the decision around 4pm Friday.
I'll let you all know how it goes.