1st Anniversary of my Transplant - British Liver Trust

British Liver Trust

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1st Anniversary of my Transplant

Flowergirl24 profile image
19 Replies

One year ago today I was given a very special gift by a kind family who made it possible for me to remain with my family and to be able to write this today. Baby steps are now adult steps, Bilirubin is now 8 down from 567! If I haven’t mentioned it before, I now know exactly what I had which was Ductopenic Hepatic Sarcodosis.

To everyone in our liver community, it is a long, hard, emotional and painful journey, keep going and never give up. ☀️

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Flowergirl24 profile image
Flowergirl24
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19 Replies
Roots57 profile image
Roots57

Congratulations!!🎉🥳👏🥂🍾 it is indeed a hard journey but we aren’t alone. Sending you hugs and positivity xxx

Flowergirl24 profile image
Flowergirl24 in reply to Roots57

Thank you Roots57. I hope you are continuing to make great recovery too! ❤️❤️❤️

Roots57 profile image
Roots57 in reply to Flowergirl24

I have so much to be thankful for. Feeling normal now 6 months post transplant. Enjoy today xx

Flowergirl24 profile image
Flowergirl24 in reply to Roots57

Great news! Xxx

Richard-Allen profile image
Richard-Allen

Well done Flowergirl, I see this is a rare condition you have. You've done really well, I realise it's been a very hard, emotional journey for you.

These liverversaries make for a very private and personal day. I always use this as a time of reflection, to look back upon my journey and of all those people who made it all happen.

Enjoy your day, it is after all a second birthday, it's a celebration of day you were reborn.

I'm having three birthday this year. 29th April was my birthday, the 1st Oct will be my 5th rebirthday, and on the 9th Oct, I'll be 25,000 days old. So much cake. xxx

Flowergirl24 profile image
Flowergirl24 in reply to Richard-Allen

Thank you Richard. Yes, the odds of what I had... I wish it was the lottery I’d won instead! From your advice snd others on here, it’s now time to write to the donor family now that first anniversary is here. It’s never the right time but I’m ready now.

As I’ve told my sons, I’m starting afresh so therefore I’m younger than them now. Congrats for 5 years rebirth xxx

Richard-Allen profile image
Richard-Allen in reply to Flowergirl24

Many thanks, That letter will be the hardest letter you'll ever have to write. Like you said, there isn't ever a right time to write it.

I wrote mine after about six months, and in hindsight I think it may have been too soon as no doubt emotions for the loss of the man who saved my life might have still been running high. I never did get a reply. But I understand this can often happen. I still have a copy of mine, I'll send you it via a PM as it may help you to find the right words.

Best Wishes

Richard.

TT-2018 profile image
TT-2018

Congratulations on your anniversary, a day of mixed emotions and a major step forward on your surreal journey. It is certainly a hard road to travel and here’s to celebrating many more ahead of you.

Best wishes,

Mark

Flowergirl24 profile image
Flowergirl24 in reply to TT-2018

Thank you Mark. It was very much a surreal journey and as I progress, days and weeks go by where I forget I ever had the TP even when taking my daily tablets. The advice I was given after my surgery was that they wanted me to get back to normal living which is what I am doing to a degree.

Thanks again for your wishes

Caroline

Treeclimber62 profile image
Treeclimber62

Well done it's quite a journey 4 years for me still can't believe it you will continue to get stronger and never forget your doner enjoy your special day

Flowergirl24 profile image
Flowergirl24 in reply to Treeclimber62

Thank you Treeclimber and well done to you for 4 years!

Catlady1972 profile image
Catlady1972

Congratulations Flowergirl24, I too will be celebrating my first year in July. I wish you a very happy full life ❤️🌈

Flowergirl24 profile image
Flowergirl24 in reply to Catlady1972

Thank you Catlady. Not long now for you too that first year milestone. Wishing you a happy full life too! 😀❤️

Yellowsydney profile image
Yellowsydney

Congratulations , just had my 4 year liverversary💚

Flowergirl24 profile image
Flowergirl24 in reply to Yellowsydney

Thank you Yelloesydney and congratulations for your 4 year liverversary!☀️

PoppyPiper profile image
PoppyPiper

Hi Flowergirl, congratulations! I'll be having my 2nd T/P anniversary next week. I was just starting to plan 'normal living' starting with a week's holiday to Croatia in June 2020 (if I was given the all clear to fly) when Covid-19 struck, so after a year self-isolating, having my 2 covid jabs I am hoping that maybe later in the year I can get that holiday. My poor hubby has been a rock the last 3 years, with numerous dashes to A&E prior to my transplant and all the trips to Edinburgh when I could not drive so would love to him to also get back to normal and have a well deserved holiday.

best wishes PPx

Bellaranger profile image
Bellaranger

Congratulations

Hope-feb3-2017 profile image
Hope-feb3-2017

Congratulations!!!💞🦋You did it! I hope you take in everything today! This is a VERY special moment for you and your family. Only when you are ready - feel it inside should you write your letter 😊. I am now 4 yrs pt. I wrote my letter 4 months after and it was just very natural. I woke up that morning and I knew this was the day. I have not received a response. Which I understand can be difficult. But we all I believe we will get a response ❤️

Love this day!!! I wish you health for years to come 💗🌹

Flowergirl24 profile image
Flowergirl24 in reply to Hope-feb3-2017

Thank you Hope. It’s an amazing journey. This first year had gone so fast. I’m sure the next ones will zoom ahead. Yes, I’m ready to write in time for my next appointment in June so I can hand my letter to the team to pass on, Have a lovely day! ☀️☀️☀️

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