The raising of awareness of liver disease over the years has taken me down many different roads. People in high places need to be informed of what is going on as well as the general public. I have, it seems used every opportunity to try and spread the word, and have been a thorn in the side of many MP’s and politicians over the years (who for the best part seem blinkered).
My latest venture has taken a rather unexpected twist. My next-door neighbour is a lovely young lady, who is presently studying to become a nurse at the local Keele University, and at our local University Hospital. She is writing her dissertation based on me and of my experiences with mental health and liver disease, and especially that of post-transplant survivors guilt.
I have written a four-page article about my experiences to my neighbour’s senior lecture of nursing, Dr John Gigan. I am expecting to be invited to give a presentation of my experiences. The general consensus at the moment is that many people don’t realise the traumatic mental effects a liver journey can have on someone especially post-transplant with PTSD.
The only way of getting local healthcare and the CCG’s to take notice is to raise awareness.
The fight goes on. Bring it on 2021.