edinburgh liver disease patients/ fami... - British Liver Trust

British Liver Trust

38,081 members18,674 posts

edinburgh liver disease patients/ family members

5 Replies

Hi,

My name is Amy Caffrey and I have recently taken up the post of a support group facilitator for the area of Edinburgh and Lothian for the British liver trust. We are hoping to create support groups for people who are affected with liver illnesses whether it be a patient themselves or their family members. As we know, many people affected by a liver condition find it helpful to speak to others and share experiences. Meeting face to face can really help and the British Liver Trust facilitates a number of support groups across the UK and are now looking to expand and provide support groups for the residents of Scotland.

Do you think that this would be of interest to any of the people who use your services or know of anyone who would interested in getting involved?

If you would like any more information or would like to have a chat about what we do then you can contact me via email.

Sincerely,

Amy Caffrey.

5 Replies
Bolly profile image
Bolly

There's always people on Facebook liver disease groups asking about support groups in their area. You would have to join all the forums though! Ones that come to mind are the Facebook Group for AIH facebook.com/groups/AIHorgUK/, the Facebook Group for those with cirrhosis caused by various hepatitis conditions facebook.com/groups/3932852..., and the one for hepatitis C facebook.com/groups/5522462.... Both AIH and HEp C Nomads also have websites where you could post your above message.

AyrshireK profile image
AyrshireK

Hi Amy, looking forward to seeing what develops in the way of support groups in Scotland. My hubby is currently on the transplant list at Edinburgh though we travel through from South Ayrshire for appointments.

Katie :)

in reply toAyrshireK

Hi Katie,

The British Liver Trust are currently moving into Scotland. I am the first person in office in Scotland and am based in Edinburgh. If you ever need any advise or want any information don't hesitate to contact me. My email is Amy.Caffrey@britishlivertrust.org.uk.

Regards,

Amy

Thanks for the advise Bolly. I will do that :)

grace111 profile image
grace111

i am interested i am looking more for a pain support, ways of dealing with the pain. as with liver disease our immune system is low. and some of the pains are very difficult so bear and talking about pain in aa or na is hopeless as not everyone is in pain and we are not looking for pity. we want to be treated as if we are the same as every one else. its just like an alcoholic going to aa they know they are in the right place and understood by everyone. but talking about illness and pain in those groups is hopeless.i have found anyway. 

Not what you're looking for?

You may also like...

Can all members please read.

This online community is run by the British Liver Trust and is overseen by moderators who do their...

Questions for liver doctors

A University College London research team, working with the Royal Free Hospital and the British...

Request from communications department at British Liver Trust

Hi all, From time to time we receive requests from TV companies looking to make a programme about...

New British Liver Trust campaign! Please support

We wanted to let you know about an exciting new campaign that we are launching today – a campaign...

All forum members please read

This online community is run by the British Liver Trust and is overseen by moderators and admin...