Looking for

[Shaunwood]

Hi I had a liver transplant just over 2yrs ago would like to hear off anyone who has been in same situation &was in QE may 2018

[Hidden]

Hi

I had my transplant in the QE in March 2 years ago

David

[Kristian]

Hi Shaun,

I had my liver transplant at the QE too. Mine was 3 years ago though.

[janerayne]

I had one 31 years ago, on list now but its never stopped me doing anything , i was 20, somebody lost their life for us to live, live life , enjoy xx

[Shaunwood in reply to janerayne]

R U back on list 4 another transplant if so what's happened?

[janerayne in reply to Shaunwood]

Just scarring on liver , 31 years i would not have had though, technolgy and medicine has come so far now to back then .

[Shaunwood in reply to janerayne]

R u still going to QE I'm isolating consultant phones me

[janerayne in reply to Shaunwood]

Im having appts by phone but had to go to qe yesterday for ultrasound

[Dan68]

Had mine in QE too

April 2013

[Shaunwood in reply to Dan68]

Hi how r u feeling now

[Dan68]

Ok

I live a normal life and have done the last 7 yrs.

I eat what foods i like, i drink beer, i work full time and have done throughout the lockdown earlier this year.

We were given another chance at life but theres no way im going to hide away in fear of everything. Just be careful and take precautions

[Shaunwood in reply to Dan68]

Thanks for your reply it's nice to know you are doing fine your probably a lot younger than me im isolating have been since the start of covid all i do is go for a little walk my consultant keeps intough by phone so far there's been no problems but i have got a twing along the scar line without my lovely doner i don't think i would be writing this I had PBC for a long time and was going down hill quickly and if my GP hadn't referred me to QE well i don't know take Care & be safe pat

[RammieLea]

Thank you for sharing your stories. Its both encouraging and scary at the same time... I wish you all the best... will you need another transplant or is everything okay?? Are you still diagnosed with PBC even after surgery? I assumed after operation everything was fine an no longer have health problems

[Shaunwood in reply to RammieLea]

Thanks 4 your concern at this moment I'm feeling ok my only problem is turning over in bed most ov my pain has gone as it will b 3yrs come may iv not seen my consultant since jan due 2 this terrible virus but still have regular blood tests at my drs consultant phones me with results they didn't give me long as I'd had pbc 4 a very long time & i went down hill very quickly glad all the terrible itching & other symptoms have now gone i think ov my doner &how i would ov been without her how can u say thanks 2 someone who isn't hear i don't no much about u but if u need 2 talk I'm here

[RammieLea]

Thank you darling I appreciate your kind n thoughtful words. I can’t imagine how hard it is, An how your feeling about someone losing a life to save another... But I’m sure the most of us would all like to save a life if we could... it’s a gracious n generous blessing, it’s absolutely amazing to continue blessing others after passing...leaving the world as you lived it... you deserve to enjoy your life and be happy I’m sure your donner would like you to enjoy it... to encourage an share your beautiful story...

Thank you I’d like to talk to you more. Life is very different now... I would like to talk to others who share the same struggle... my family don’t really understand and I feel pressured all the time... just because we don’t look sick PBC don’t really effect appearances.... others believe your fine and to get on with everything... not realising the pain n discomfort we endure daily