Appointment Cancellation: Hi All, I... - British Liver Trust

British Liver Trust

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Appointment Cancellation

davianne profile image
davianne
β€’51 Replies

Hi All,

I have just had my phone appointment downgraded again, to NO appointment. Has anyone else had this? I, obviously don't mind in the current circumstances, but last year I was downgraded to annual from 6 monthly appointments, so I'm feeling a bit peeved just now.

David

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davianne profile image
davianne
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51 Replies
β€’

Can't even send you out for a long wait?

Not me but my ticker defib promised appointment within a few weeks from Nov19 never happened. So keep taking the tablets. Innit for the long haul πŸ€”

Roz22 profile image
Roz22β€’ in reply to

My husband's defib appointment also canceled but has to send a reading so not that bad.

β€’ in reply toRoz22

I haven't needed monitoring yet. As with my mild cirrhosis a new November diagnosis of Atrial fibrillation is also mild. They gave me beta blockers in prep for a kick start defib as first course of action which he said would be within a matter of weeks.

It does mean meds wrong 1.25 half what they should bπŸ€”

Roz22 profile image
Roz22β€’ in reply to

Oh I thought you have a defib fitted already

β€’ in reply toRoz22

No I'm not up to speed with the technical term as I thought it would have been sorted already. Stop / start to kick it back into rythm, missing beats & racing. πŸ™„

Roz22 profile image
Roz22β€’ in reply to

My husband has had one for twenty years .

ThreeSmiles profile image
ThreeSmiles

That’s a bummer πŸ‘Ž. Would have thought they could have squeezed un a telecon so things can’t be good. My next clinic isn’t until the 24th - no contact as yet....

davianne profile image
davianneβ€’ in reply toThreeSmiles

Best of luck Miles 🀞🀞🀞

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

Now you are coming out as Hidden as well in my Notifications, David πŸ™.

davianne profile image
davianneβ€’ in reply toThreeSmiles

What on earth is going on 😠😠😠, I know I'm a bit reclusive, but I'm not that bad.....am I 🀣🀣🀣

davianne profile image
davianneβ€’ in reply toThreeSmiles

Miles, is this a virus ❓❓❓, Splodge is coming up as hidden to me now......what on earth is going on❓❓❓ I have contacted HU in the past, but no point just now. It seems like all smoke and mirrors....trying to confuse us......which in my case, is not difficult🀣🀣🀣

David

davianne profile image
davianneβ€’ in reply todavianne

I don't believe it ( Victor Meldrew voice).....one2one and donaldsgirl, are also hidden to me......was it something I said πŸ˜₯πŸ˜₯πŸ˜₯

David

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

You’re still Hidden to me!

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

I have written to Trust1...

davianne profile image
davianneβ€’ in reply toThreeSmiles

Miles, I don't think Trust 1 can help us. I had to contact HU to get it sorted last time, as they manage the forum on behalf of BLT.

David

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

But Trust1 talks to them on our behalf - well she did last time there was an issue πŸ‘

davianne profile image
davianneβ€’ in reply toThreeSmiles

OK Miles, when I last had an issue, I contacted them direct, either way it needs sortingπŸ‘

David

β€’ in reply toThreeSmiles

I see 9 - 5 No1 today.πŸ€”

β€’ in reply to

I heard that ! I will be contacting HU admin

β€’ in reply to

It's the way I tell em. You a actually come up as "Hidden."

I checked 9 & yourself 5 were online but not 1.

By the way missing profile pictures in notifications have resolved itself maybe? πŸ€”

davianne profile image
davianneβ€’ in reply to

And profile pictures ascribed to the wrong person........that's why I contacted HU a while back;

ThreeSmiles profile image
ThreeSmilesβ€’ in reply to

Ahh thanks Trust5 πŸ‘

β€’ in reply toThreeSmiles

Because One wasn't looking.

Am I "hidden"? πŸ‘…

ThreeSmiles profile image
ThreeSmilesβ€’ in reply to

Not any more!

Splodge60 profile image
Splodge60β€’ in reply todavianne

I wasn’t aware that I was β€˜hidden’ ?????

β€’ in reply toSplodge60

Who said that? 😜

davianne profile image
davianneβ€’ in reply toSplodge60

Yes, Slpodge, your replies to me, had you as hidden 3 times

David

davianne profile image
davianneβ€’ in reply toSplodge60

I just checked on your last post on my notifications, and you are now back as Splodge, Splodge 😊

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

Everyone is back. - yippeee - even feckle πŸ˜€

davianne profile image
davianneβ€’ in reply toThreeSmiles

Well, Miles, we can't have everything 🀣🀣🀣......sorry Fecky......only a joke😊😊😊,

David

ThreeSmiles profile image
ThreeSmilesβ€’ in reply todavianne

Hahaha you naughty man! πŸ˜€

Oh no!! I would have thought you could hat at least had a telephone consultation!! Mine is in June 11th so I've not heard anything, yet!! Stay safe, David. Lynne

Pussycat65 profile image
Pussycat65β€’ in reply to

I have my telephone consultation on Wed am and have had a text to confirm....so keeping my fingers crossed!

β€’ in reply toPussycat65

Hi

I really hope it goes ahead. Please let me know how you get on. Take care and stay safe. Love and hugs Lynne xxxx 😘

donaldsgirl profile image
donaldsgirl

Hi David. I guess all we can do is be grateful that they feel we are stable enough at the mo. Meanwhile, stay safe. Jacquie x

davianne profile image
davianneβ€’ in reply todonaldsgirl

Hi Jacquie,

If only that were true. I have waited a year for this, but as Miles says things must be pretty bad, so C'est la Vie, Que sera, sera etc

David

David

You know exactly how I'm feeling about your appointment delay and cannot explain exactly how truly disappointed I'm feeling and I do hope you have the strength to keep up your fight! No one should suffer as much pain as you and Lynne 24/7

I shall be πŸ™ that somehow your next appointment comes faster!

Loads of love to you an Annie 😘

davianne profile image
davianneβ€’ in reply to

Thanks for your kind words, much appreciated.

He has dodged me this time, but next time I will get the referral I want.

Once more unto the breach dear friends...once more 🀺🏹

β€’ in reply todavianne

That's the spirit I like to read David πŸ‘as I know you'll fight your corner well!🀺

Take care my friend x

davianne profile image
davianneβ€’ in reply to

Oh yes I will Trish πŸ₯‹πŸ₯‹πŸ₯‹

β€’ in reply todavianne

Wow ! 3 rd Dan black belt ! Cool πŸ™‚πŸ‘

Bootandall profile image
Bootandall

Hello,

I hope you are doing well, l know you had a lot of questions about your diagnoses/care. Such as being on a beta blocker for your varices.

Could you take this opportunity to pick another doctor, or are you stuck with who they assign to you?

davianne profile image
davianneβ€’ in reply toBootandall

Thanks Boot,

I will have to follow "procedure", which is impossible just now, as our GP surgeries are closed, and all resources are redirected to fighting covid-19.

My time will come when things get back to normal........whenever that will be, God knows. The wheels are still turning though, as my GP text me asking for blood pressure readings, and as they were a bit high, he put me on yet another med. I sometimes feel like a maraca 😁😁😁

David

one2one profile image
one2one

Cancelled, the only word anyone ever hears today. Hopefully you’re be back on track soon πŸ™.

Chrissie xx

davianne profile image
davianneβ€’ in reply toone2one

Thanks Chrissie πŸ‘πŸ™

David

Peter_Plymouth profile image
Peter_Plymouth

Funny you should ask but my local hospital called me this morning to cancel my 6 week appointment but not able to make a new one even though they have also asked for bloods.

Apparently the secretary will contact at some stage! I know they are under pressure but they still need to talk to their patients.

Mayfield just need to be patient lol

davianne profile image
davianneβ€’ in reply toPeter_Plymouth

I agree Peter, I have not been asked for bloods either. For mr it's just by Text.

David

β€’ in reply todavianne

As long as it's stays warm & in circulation your blood counts. πŸ™„

Hi David

I really feel for you. You must be so disappointed but I know you will keep fighting. Capsule pain is horrendous as we both know!! Please take care and stay safe. Love and hugs to you and Annie. Lynne xxxx

davianne profile image
davianneβ€’ in reply to

Aww thanks Sweetie,

and you and Dave stay safe as well.

David

β€’ in reply todavianne

Thank you. You are very welcome. Pm me anytime. Thank you for your continued support. You all take care and stay safe . Love and hugs to you and Annie. Lynne xx

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