Appointment Cancellation: Hi All, I... - British Liver Trust

British Liver Trust

26,441 members13,310 posts

Appointment Cancellation

davianne profile image
davianne

Hi All,

I have just had my phone appointment downgraded again, to NO appointment. Has anyone else had this? I, obviously don't mind in the current circumstances, but last year I was downgraded to annual from 6 monthly appointments, so I'm feeling a bit peeved just now.

David

51 Replies
Hidden profile image
Hidden

Can't even send you out for a long wait?

Not me but my ticker defib promised appointment within a few weeks from Nov19 never happened. So keep taking the tablets. Innit for the long haul 🤔

Roz22 profile image
Roz22 in reply to Hidden

My husband's defib appointment also canceled but has to send a reading so not that bad.

Hidden profile image
Hidden in reply to Roz22

I haven't needed monitoring yet. As with my mild cirrhosis a new November diagnosis of Atrial fibrillation is also mild. They gave me beta blockers in prep for a kick start defib as first course of action which he said would be within a matter of weeks.

It does mean meds wrong 1.25 half what they should b🤔

Roz22 profile image
Roz22 in reply to Hidden

Oh I thought you have a defib fitted already

Hidden profile image
Hidden in reply to Roz22

No I'm not up to speed with the technical term as I thought it would have been sorted already. Stop / start to kick it back into rythm, missing beats & racing. 🙄

Roz22 profile image
Roz22 in reply to Hidden

My husband has had one for twenty years .

That’s a bummer 👎. Would have thought they could have squeezed un a telecon so things can’t be good. My next clinic isn’t until the 24th - no contact as yet....

davianne profile image
davianne in reply to ThreeSmiles

Best of luck Miles 🤞🤞🤞

ThreeSmiles profile image
ThreeSmiles in reply to davianne

Now you are coming out as Hidden as well in my Notifications, David 🙁.

davianne profile image
davianne in reply to ThreeSmiles

What on earth is going on 😠😠😠, I know I'm a bit reclusive, but I'm not that bad.....am I 🤣🤣🤣

davianne profile image
davianne in reply to ThreeSmiles

Miles, is this a virus ❓❓❓, Splodge is coming up as hidden to me now......what on earth is going on❓❓❓ I have contacted HU in the past, but no point just now. It seems like all smoke and mirrors....trying to confuse us......which in my case, is not difficult🤣🤣🤣

David

davianne profile image
davianne in reply to davianne

I don't believe it ( Victor Meldrew voice).....one2one and donaldsgirl, are also hidden to me......was it something I said 😥😥😥

David

ThreeSmiles profile image
ThreeSmiles in reply to davianne

You’re still Hidden to me!

ThreeSmiles profile image
ThreeSmiles in reply to davianne

I have written to Trust1...

davianne profile image
davianne in reply to ThreeSmiles

Miles, I don't think Trust 1 can help us. I had to contact HU to get it sorted last time, as they manage the forum on behalf of BLT.

David

ThreeSmiles profile image
ThreeSmiles in reply to davianne

But Trust1 talks to them on our behalf - well she did last time there was an issue 👍

davianne profile image
davianne in reply to ThreeSmiles

OK Miles, when I last had an issue, I contacted them direct, either way it needs sorting👍

David

Hidden profile image
Hidden in reply to ThreeSmiles

I see 9 - 5 No1 today.🤔

Trust5 profile image
Trust5Administrator in reply to Hidden

I heard that ! I will be contacting HU admin

Hidden profile image
Hidden in reply to Trust5

It's the way I tell em. You a actually come up as "Hidden."

I checked 9 & yourself 5 were online but not 1.

By the way missing profile pictures in notifications have resolved itself maybe? 🤔

davianne profile image
davianne in reply to Hidden

And profile pictures ascribed to the wrong person........that's why I contacted HU a while back;

ThreeSmiles profile image
ThreeSmiles in reply to Trust5

Ahh thanks Trust5 👍

Hidden profile image
Hidden in reply to ThreeSmiles

Because One wasn't looking.

Am I "hidden"? 👅

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Not any more!

Splodge60 profile image
Splodge60 in reply to davianne

I wasn’t aware that I was ‘hidden’ ?????

Hidden profile image
Hidden in reply to Splodge60

Who said that? 😜

davianne profile image
davianne in reply to Splodge60

Yes, Slpodge, your replies to me, had you as hidden 3 times

David

davianne profile image
davianne in reply to Splodge60

I just checked on your last post on my notifications, and you are now back as Splodge, Splodge 😊

ThreeSmiles profile image
ThreeSmiles in reply to davianne

Everyone is back. - yippeee - even feckle 😀

davianne profile image
davianne in reply to ThreeSmiles

Well, Miles, we can't have everything 🤣🤣🤣......sorry Fecky......only a joke😊😊😊,

David

ThreeSmiles profile image
ThreeSmiles in reply to davianne

Hahaha you naughty man! 😀

Oh no!! I would have thought you could hat at least had a telephone consultation!! Mine is in June 11th so I've not heard anything, yet!! Stay safe, David. Lynne

Pussycat65 profile image
Pussycat65 in reply to Oldham65

I have my telephone consultation on Wed am and have had a text to confirm....so keeping my fingers crossed!

Oldham65 profile image
Oldham65 in reply to Pussycat65

Hi

I really hope it goes ahead. Please let me know how you get on. Take care and stay safe. Love and hugs Lynne xxxx 😘

Hi David. I guess all we can do is be grateful that they feel we are stable enough at the mo. Meanwhile, stay safe. Jacquie x

davianne profile image
davianne in reply to donaldsgirl

Hi Jacquie,

If only that were true. I have waited a year for this, but as Miles says things must be pretty bad, so C'est la Vie, Que sera, sera etc

David

Hidden profile image
Hidden

David

You know exactly how I'm feeling about your appointment delay and cannot explain exactly how truly disappointed I'm feeling and I do hope you have the strength to keep up your fight! No one should suffer as much pain as you and Lynne 24/7

I shall be 🙏 that somehow your next appointment comes faster!

Loads of love to you an Annie 😘

davianne profile image
davianne in reply to Hidden

Thanks for your kind words, much appreciated.

He has dodged me this time, but next time I will get the referral I want.

Once more unto the breach dear friends...once more 🤺🏹

Hidden profile image
Hidden in reply to davianne

That's the spirit I like to read David 👍as I know you'll fight your corner well!🤺

Take care my friend x

davianne profile image
davianne in reply to Hidden

Oh yes I will Trish 🥋🥋🥋

Hidden profile image
Hidden in reply to davianne

Wow ! 3 rd Dan black belt ! Cool 🙂👍

Hello,

I hope you are doing well, l know you had a lot of questions about your diagnoses/care. Such as being on a beta blocker for your varices.

Could you take this opportunity to pick another doctor, or are you stuck with who they assign to you?

davianne profile image
davianne in reply to Bootandall

Thanks Boot,

I will have to follow "procedure", which is impossible just now, as our GP surgeries are closed, and all resources are redirected to fighting covid-19.

My time will come when things get back to normal........whenever that will be, God knows. The wheels are still turning though, as my GP text me asking for blood pressure readings, and as they were a bit high, he put me on yet another med. I sometimes feel like a maraca 😁😁😁

David

Cancelled, the only word anyone ever hears today. Hopefully you’re be back on track soon 🙏.

Chrissie xx

davianne profile image
davianne in reply to one2one

Thanks Chrissie 👍🙏

David

Funny you should ask but my local hospital called me this morning to cancel my 6 week appointment but not able to make a new one even though they have also asked for bloods.

Apparently the secretary will contact at some stage! I know they are under pressure but they still need to talk to their patients.

Mayfield just need to be patient lol

I agree Peter, I have not been asked for bloods either. For mr it's just by Text.

David

Hidden profile image
Hidden in reply to davianne

As long as it's stays warm & in circulation your blood counts. 🙄

Hi David

I really feel for you. You must be so disappointed but I know you will keep fighting. Capsule pain is horrendous as we both know!! Please take care and stay safe. Love and hugs to you and Annie. Lynne xxxx

davianne profile image
davianne in reply to Oldham65

Aww thanks Sweetie,

and you and Dave stay safe as well.

David

Oldham65 profile image
Oldham65 in reply to davianne

Thank you. You are very welcome. Pm me anytime. Thank you for your continued support. You all take care and stay safe . Love and hugs to you and Annie. Lynne xx

You may also like...