Keep checking the website!

Dear all,

Just to let you know that we are constantly updating the website with new information, helpful links and blogs.

Please do check it out, we have new information on access to benefits and welfare, and Sourcing food and essential supplies for high-risk households going on the website this afternoon.

Sending you all best wishes

Trust1 and the team

[birty]

Hi

My question relates to the shielding and 12 week isolation, it seems alot of people including myself with AIH and on immune suppression have not received a text message or letter, I rang and spoke to my consultants secretary and she was not aware that we're on it, so are we supposed to shield or not? So confusing.

[Hidden in reply to birty]

Hi Birty,

All hospitals have been asked to identify people on immuno-suppressive treatment for autoimmune hepatitis and they will receive a letter confirming that this has happened and you are registered with NHS England.

Your hepatologist will know about this, you may want to direct the medical secretary to this link, see below and ask to speak with the consultant

gov.uk/government/publicati...

Best wishes

Trust1

[birty in reply to Hidden]

Thankyou for your prompt reply , she did say she was going to call me back, so hopefully will know more then.

[birty in reply to Hidden]

I've just heard back, according to my consultant I don't need a letter to shield unless I need one for my employer, I do need one for my employer so he is going to send me a letter.

[AyrshireK in reply to birty]

Hi Birty, the majority of those on the AIH facebook page have all received letters regarding shielding. The .gov guidance specifically states "People on immunosuppression therapies sufficient to significantly increase risk of infection."

This was posted on there the other day (Hepatology Risk Groups) -

High Risk Group -`Shielded group`Advise mandatory self –isolation

- Patients having undergone liver transplantation and taking immunosuppression

- Patients with autoimmune hepatitis taking immunosuppression

Patients with Increased risk but no need for mandatory self -isolation / Do need to social distance.

- Patients with decompensated liver cirrhosis

Katie

[birty in reply to AyrshireK]

Yes, I saw that, I haven't received anything and thought I'd better ask as my consultant's secretary didn't seem to know about it.