Just to give some of you hope - British Liver Trust

British Liver Trust

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Just to give some of you hope

C1JAM profile image
25 Replies

My fibroscan score approximately 2 yrs ago was 26!

following years of alcohol abstinence todays result was 11!

Just shows its possible

Good luck to you all.

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C1JAM profile image
C1JAM
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25 Replies

Downwards👍 & upwards👍

Onwards and upwards! Congratulations CJam

Fantastic!! Well done to you. You should be very proud of yourself. Take care Lynne

Hi, sorry to sound dumb but are you talking about your KPA score? 😊

C1JAM profile image
C1JAM in reply to

Yes that's the one

C1J1 profile image
C1J1

Fab! That’s great news.

Do you mind me asking, do you have cirrhosis?

C1JAM profile image
C1JAM in reply to C1J1

Yes I do have cirrhosis. Diagnosed approximately 3 1/2 years ago.

C1J1 profile image
C1J1 in reply to C1JAM

Thank you for your reply. I was diagnosed with cirrhosis in January. Still not sure I know where I stand. Not seeing consultant until end of April. So still have lots of unanswered questions.

ThreeSmiles profile image
ThreeSmiles

Good stuff - you’re certainly not jammy because you have worked to achieve that - good job 👍.

Miles

briccolone profile image
briccolone

Brill ,well done. Very glad for you and do you feel better in fact?

C1JAM profile image
C1JAM in reply to briccolone

I feel better now than ever in my life.

Lobby67 profile image
Lobby67

Well done C1, you saw your results, didn’t wait for a Dr to ‘fix’ you and did something about it! Hard work and determination pet! Well done x

briccolone profile image
briccolone

excellent

Good afternoon C1JAM,

Congratulations on your continued abstinence.

It is great to hear a positive and inspiring story.

Best wishes

Trust9

davianne profile image
davianne

Hi C1JAM,

How did you manage to get a 2nd fibroscan?, my Hep Doc, just wants to talk about the weather, when the fibroscan machine is sitting there in his office gathering dust.

I was diagnosed at the sametime as you with a median of 29.5, and I would love to know if it has improved, but my Doc says it can't improve..... I'm getting nowhere with him.

David

in reply to davianne

Ditto again. 😭

C1JAM profile image
C1JAM in reply to davianne

I didn't ask or expect it, my consultant just did it as part of my 6monthly check up. I was so surprised at the reduction and she said that it can and is possible to reduce to a degree after abstinence.

🤷‍♂️

That’s fantastic - well done!

Excuse my ignorance but surely with a FibroScan Reading now of 11, you are no longer in the cirrhotic category? I understand this to be F2/F3 which, when alcohol-related, suggests moderate to severe scarring, rather than advanced scarring/cirrhosis?

Anyway, a great result for yourself which demonstrates that abstinence and determination really can help, and encouraging for the whole community.

C1JAM profile image
C1JAM

yeah, It does look to be out of the cirrhotic area, but im not taking it as 100% accurate for now. ill wait and see what the next one is

Millie09 profile image
Millie09

Great news ! My fibro was 28 kpa , feb 2017 , now same as you 11 .5 kpa reading back in nov last year, I dont really feel any different physically though , intact some of my symptoms of fatigue, insomnia and now GERD I did not have back then ?, .. dont know if this is good or bad lol

C1JAM profile image
C1JAM in reply to Millie09

What are your blood test results like?

Millie09 profile image
Millie09 in reply to C1JAM

My bloods are all normal? That's what I dont understand, ultrasound is as it should be with cirrhosis

C1JAM profile image
C1JAM in reply to Millie09

Same as me then, normal bloods.

It's a strange disease

Millie09 profile image
Millie09 in reply to C1JAM

It really is baffling lol , but good to know that things are ok liver wise for now 😊

Well done! A great achievement.

Trust1

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