Deep freeze gel? : Post transplant can... - British Liver Trust

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Deep freeze gel?

jojokarak profile image
jojokarak
β€’17 Replies

Post transplant can we use deep freeze gel? I am in agony with bursitis in my hip and need relief 😌 😊

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jojokarak
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17 Replies
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Kristian profile image
Kristian

Deep freeze and deep heat should be fine but avoid any of the ones containing ibuprofen or other similar NSAID. I did ask a pharmacist about those and was told some could still get into your system even with the topical creams.

If its something that persists then it's worth checking what you can do next time you are at clinic. In Salford you can also self refer to the physiotherapists at hope. I did that for my knee and it's usually the first point of call in the treatment chain. If that fails then go back to your gp and they will refer you to the soft tissue clinic at the Oaklands for some further treatment. I've just had that done for my knee. They took fluid out of the swollen bursa. I then went back a couple of weeks later for some dry needling of my tendon that had developed tendonosis.

jojokarak profile image
jojokarakβ€’ in reply toKristian

I didn't know you had it as well its bloody painful..... I have had it constantly for wee now... And I am going to self refer I was going to wait until we moved though as I don't know how quick it's going to be 😁

And thanks my dear x I will check the ingredients and hopefully I can use it

Hope your OK 😘

Kristian profile image
Kristianβ€’ in reply tojojokarak

Doing better now. The knee has been a long story, lol, and it's taken a long time to get to this stage. Taking the fluid out of the bursa was a great help and it may be worth exploring this with your GP as they may be happy to arrange that fir the hip irrespective of any exercises the physio may give. With the knee rehab exercises is usually the most effective treatment. Not sure if that's also the case for hips, lol.

jojokarak profile image
jojokarakβ€’ in reply toKristian

I going to make an appointment this week.... I trying to do exercise and I can't πŸ˜‚πŸ˜‚

Did it hurt when they took the fluid out of your knee?

Kristian profile image
Kristianβ€’ in reply tojojokarak

Not really, the usual sharp scratch and that's about it. Was a bit sore for a few days after but then was much better in general use. The dry needling was a bit more of an ooch feeling but nothing over the top. But, draining the bursa was relatively painless.

ThreeSmiles profile image
ThreeSmiles

Hi jojo

I use these self heating pads called Cura-Heat (no doubt other makes are available πŸ˜€). You stick them to the inside of your clothes , i.e. sticky bit attaches to clothes, and the pads heat up within about 15 minutes. They get quite/very hot and last about 9-10 hours. The heat helps the pain in theory. In practise they work for me on my post op back pain - waited until scar completely healed.

I didn’t take any guidance from any medical professional I just used because I was getting fed up with the pain. Please take advice as necessary!

Of course the big downside is the cost. I understand there are some gel pads you can re-use - that are heated up in the microwave. I have never used this type myself.

Miles

jojokarak profile image
jojokarakβ€’ in reply toThreeSmiles

I need cold pads x it's too reduce the swelling of the fluid in my hip it's a bloody nightmare lol πŸ˜‚

I have used heat spray as long as that hasn't got ibuprofen it's fine I just haven't used ice ones yet x

davianne profile image
davianne

Hi Jojo,

Although I'm not post transplant, and still have cirrhosis, I was prescribed topical ibuprofen by my GP for a burst bursa I had on my knee, and he knew of my cirrhosis. I spent 3 hours kneeling , assembling a cross training machine for a friend, and that was my reward. It got badly infected, and was bloody sore for 2 weeks. The upside is I now don't have a lump on my knee😊😊😊

jojokarak profile image
jojokarakβ€’ in reply todavianne

We're definitely not allowed topical ibuprofen post transplant 😊 but so glad it helped you x I spoke to transplant hospital this morning and they have said I can use the deep freeze gel until I see my gp thank god x

Hi

I really feel for you. I do hope the freeze works for you, you've been through enough. Love and hugs Lynne xxxx

Thistle09 profile image
Thistle09

Over here in the US of A, we have something called Salonpas. They are pain-relieving patches that will work on any body part, including feet! They're available in two forms. One is much more expensive; I'm not sure what the extra ingredient is. The less expensive one has 60 patches. There are only 3 active ingredients: camphor, menthol, methyl salicylate -- all of which are called "topical analgesics" so I imagine they are not absorbed into your bloodstream. You just attach them to your skin where the pain is, and leave them on for up to 8 hours. I have found them to work really well on my lower back and even on my knees. Hope you're feeling better!

alfredthegreat profile image
alfredthegreat

Hi jojo,

I didn't know much about bursas until I got one on my elbow about six months ago. Luckily it wasn't painful and it took about 4 months to go down. Now I have one on the side of my knee. Once again luckily not infected or painful.

I'm just wondering if they are something that come about because of the medications that we take and also wondering what percentage of us on the forum get them? Bursas also seem to be linked to arthritis which seems to be a fairly common problem among us on here.

Hope that you've got that pain settled by now.

All the best.

Alf

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

Hiya hunni 😊 sorry not seen this sooner we have just moved and as anyone knows it's knackering x

I think it's quite common amongst us I think it's due to the muscle loss pre transplant 😊

Fingers crossed mine has calmed down the last few days the relief is immense..

alfredthegreat profile image
alfredthegreatβ€’ in reply tojojokarak

Hi jojo.

Glad that pain has settled for you.

Definitely something you could have done without with a house move going on.

Expect that you've still got masses to do too sorting out cupboards and drawers and changing things. Good luck with all that!

I'm about to embark on a muscle building regime. Starting with swimming ( well more like wading to start with :-) ) then maybe these bursas will stop appearing. It's been very lucky that mine haven't hurt in any way. Hope yours clears off soon.

Hope you have many, many happy years in your new home :-) :-)

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

Thanks so much alf 😘

I think I need to have swimming lessons as my confidence has disappeared in water and I was a swimming champ in school πŸ˜‚πŸ˜‚ it's hilarious I used to love it x

alfredthegreat profile image
alfredthegreatβ€’ in reply tojojokarak

Think I will be just wading for a while jojo before I'm confident enough to swim again :-) :-)

jojokarak profile image
jojokarakβ€’ in reply toalfredthegreat

I don't feel so bad now πŸ˜‚ xx

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