So we saw the consultant following GP letter and my call to secretary about hubby. On Fri they said drain needed but agreed to appt today first. Thank goodness!! Upshot is:
20mg furoesimide added
Watch BP
Bloods done
GP to continue being brilliant
If weight up by 2kg in next week or two ring and will be admitted for drain
Consultant appts gone to 4 weekly
Keeping very close eye on him but hoping to avoid transplant as thinks will improve
Ferritin down from 1000 in Oct to 800 slow but the right way
Came out more positive
Thanks again for everyone's support and help
Karen
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POSITIVEMUM3
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Yeah pretty tired permanently at the moment - well I am!!! Up today to take son to his Infusion at hospital but different one!! Not sure how I will manage work once I go back. Think I'll need nap!!
Thanks for your reply
Karen
Good morning POSITIVEMUM3,
I am glad you have a clear management plan in place for your husband and I am sure our lovely forum members ( and us of course!) will continue to support you
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