Dizzy spells

[Spanishnan]

Hi everyone. Hope you are all feeling good today.

Does anyone have dizzy spells & do silly things like walk into door frames? Not sure if it's anything to do with PBC or just me. Would be interested to know. Could it be anything to do with urso? Didn't have these problems before I started taking them🤔🤔🤔

[Hidden]

Spanishnan, if it's a new symptom it would be best to ask doctor to rule out any other suspects but it is a PBC well known effect too. For those of us who bleed/bruise easily and have fragile bones, (also known effects of PBC), falling and banging into doors is a nuisance. Tai Chi is a helpful way of getting better balance. Could you stand on the sandy shore of your Spanish beach location that you are wisely keeping secret, and be a bit Zen for 5 minutes a day? x

[ThreeSmiles in reply to Hidden]

Aha Phyllis I did some tai chi when I was at my 3 month one day a week falls clinic! I never could get into that mode of imagining myself sitting on a beautiful palm fringed beach in the middle of the ocean when I was in a circle with 15 other wobbly folk in an old Victorian (at least!) Hospital in the middle of a busy town. It was a non starter! Nevertheless the rest of the course was brilliant and well worth going on for those of us struggling with balance 👍

Miles

[Hidden in reply to ThreeSmiles]

ThreeSmiles - You may want to go again after surgery to your back! I can't imagine a palm-fringed beach either. Why do some people tell us to do that? Follow something you love like a vapour-trail of an aircraft in a clear blue sky. I look at the pole star near a full moon in a clear night sky. I imagine I'm standing in my garden because it is easy to imagine that wherever I am.

[ThreeSmiles in reply to Hidden]

😎 coolio 👍👍 . Vapour trail hehe, if I look at that then I can at least imagine flying off to a beautiful beach somewhere exotic 😁

[Hidden in reply to ThreeSmiles]

To be fair, when falling over is a possibility, I'd rather have a sheet of A4 with a 2inch diameter black dot on it, pinned to the wall, at eye level in front of me. I'd rather not fall over backwards following an imaginary vapour trail - definitely, absolutely, don't do it!

[ThreeSmiles in reply to Hidden]

I have to sit down when I look up. I have to sit down when I fly my planes too boo hoo ☹️

😁

[Candy12]

Firstly if it’s a new symptom, I’d say get checked out by the doctor it sounds more like BPV (benign positional vertigo) that can be caused by an inner ear problem. I’am not a doctor just a sufferer of BPV.

I’ve not heard of urso causing dizziness, but low blood pressure in PBC , might. So it’s worth checking it out.

[Hidden in reply to Candy12]

Hi Candy I get BPV I try to do the epley manoeuvre. It generally helps.

Jaycee