sleeping problems : hi there I’m sure... - British Liver Trust

British Liver Trust

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sleeping problems

Honeysuckle123 profile image
14 Replies

hi there

I’m sure this has been asked many times before but I have NAFLD and chronic insomnia. The doctors have sadly been no help with the insomnia, there just doesn’t seem to be anything they can do. My question is, does anyone know of/take over the counter sleeping aids ie Nytol etc and know how dangerous they can be for the liver? I work full time and I’m so desperate for sleep!

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Honeysuckle123
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14 Replies
BritishLiverTrust11 profile image
BritishLiverTrust11Moderator

Hello

We are sorry you are finding sleep so difficult.

We would encourage you to consult a health care professional when considering using supplements. While certain things may work for some people, please seek advice from your healthcare provider before trying them as they may not be suited to your condition and may be dangerous.

You can also visit this section of our website for more information about sleep management:

britishlivertrust.org.uk/sl...

Best wishes

British Liver Trust

Honeysuckle123 profile image
Honeysuckle123 in reply toBritishLiverTrust11

Thank you for your help!

livinglif123 profile image
livinglif123 in reply toBritishLiverTrust11

Morning does this also mean Natural Senna , I've been on this for years as I can't go to the toilet regularly and this has been so much worse since being diagnosed with MASLD Cirrhosis, my GP has just put them on repeat prescriptions so assumed they are ok? I just can't seem to get replies from the Hepatology nurses they just have an answer phone and never back to me. I would hate to think that I'm doing even more damage to my liver when I'm trying to do everything to stay stable .

BritishLiverTrust11 profile image
BritishLiverTrust11Moderator in reply tolivinglif123

Hello

If you are struggling to speak to your own health care team, you can call our nurse-led helpline which is open Monday 9am to 3pm and Tuesday to Friday 9am to 4pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

CuriousFish profile image
CuriousFish

Been there. But I’ve never been formally diagnosed with insomnia. I’m sorry youre going thru this. I’ve been very tempted to take an aide but I dont bc I know my liver will have to process whatever it is & I’m trying to be kinder to my poor liver. I do see a sleep dr for apnea & closely following her advice to eliminate caffeine, have good sleep hygiene (cool, dark room, no electronics in the room or 2 hrs before & hvng a fairly set routine) has helped. I also write down a bullet point list of everything that is stressing me out which seems to trick my brain enough into thinking i have a plan that it allows me to sleep. My gramps (lived to 101) always told me to make sure I wore warm but never tight socks to bed & in his later years swore by a warm bath or shower as part of putting yourself to bed. Good luck!

Honeysuckle123 profile image
Honeysuckle123 in reply toCuriousFish

thank you so much Curiousfish. It’s so hard isn’t it? I completely agree with you re our poor livers but I get so desperate I do end up taking something every so often. I just don’t know what else to do when I have to work?

CuriousFish profile image
CuriousFish

Yep. It is the worst. One thing that helped me was just telling myself over & over, “I will get through this.” I think sometimes you have to convince your brain before it will get itself in line!

I tried to be a good observer of what I was doing that may have contributed (did I accidentally have caffeine? Did I eat sugar close to bedtime (that had a much bigger effect than I realized until I started keeping track). Also, because I’m stubborn, when I couldnt sleep I refused to get out of bed & would spend literal hours tossing & turning. Usually between 2-4 am & the alarm went off at 5. Not fun, not sustainable. I found that getting up, going to another room & doing a quiet activity like reading something non-analytical until I was tired helped a lot. It took a few weeks to get it right though so hang in there!

The other thing that was messing me up but I didnt realize until I started keeping track, was that I was going to bed too early. Because the alarm goes off at 5 & I was convinced I had to have a full 8 hours sleep, I’d be in bed by 9. That works great for some but not if its actual fiction for you! Meaning go to bed when your tired & don’t beat yourself up about it. I’ve found that most days I am fully satisfied & highly functional with about 6 hours. But on the weekends I fully indulge in short 20 min naps as needed. It takes a lot of planning & observation to correct this & doing that seems impossible when youve got a full time job but please remember you are worth making yourself a priority! If you dont, who will? know it is a constant adjustment and struggle so take your wins where you can find them. Maybe make a list of what your doing now & adjust & track to find what works for you? Be patient though. Don’t expect a change to manifest positive effects in a day. Follow your gut & be kind to yourself. Sweet slumbering wishes being sent your way!

Honeysuckle123 profile image
Honeysuckle123 in reply toCuriousFish

Thank you so much for taking the time to send this lovely reply, it means a lot and I’ll definitely take it on board, thank you ☺️

Ruggerhead profile image
Ruggerhead

Honey suckle i think all that advice is perfect, try to avoid going to bed to early, and right about dont beat yourself up, we as humans have somehow decided that to be healthy we need 8 hours deep sleep, yet in centuries gone by people used to get up around 3 to start work and had maybe 2 shorter sleeps a day. Studies suggest that people actually wake up many times a night, most dont remember, and that only actually about 20% is deep sleep. Also that nearly half of us have some sort of sleep worries. Drs also dont know much about Melatonin only that we lose it as we age, like all Drs around sleep they say Oh dont get reliant on it, other holistic Drs swear by about 2-5 mg of it. I find Nizquill gummies helpful, they also contain valarian, a little bit of melatonin so maybe look at that, you can buy them over the counter in France and US, just start with 1 or 2 gummies a night that's enough. Exercise a couple of hours before bed, no computer or phone, nice epsom salts bath and reading will all help. But the main thing is dont beat yourself up, that is the main issue you have told your brain that unless your going to bed and getting 8 hours a night you cant function, some people lead long, fantastic healthy lives on 4 hours.

Honeysuckle123 profile image
Honeysuckle123 in reply toRuggerhead

Thank you so much for your reply Ruggerhead and the great, comforting, advice. The stress not sleeping can cause is just awful 😞

Weylon profile image
Weylon

It maybe silly but I find going to bed about 11pm reading for about 10mins till my eyes droop, then turn off lights and pick any letter, try and think of every word beginning with it. Last night I did P. Go on to another letter if can't think of anymore. Aseep in 10mins till 5am. Nothing to lose give it a try. I have decompensated cirrhosis. But luckily few symptoms so far. Good luck. Joan

Honeysuckle123 profile image
Honeysuckle123 in reply toWeylon

oh thank you Joan for your reply, I’ll definitely give this a go. It’s frustrating isn’t it. Glad to hear you’re staying well.

Katherine1234 profile image
Katherine1234

Have you tried high dose Thiamine B1 and high dose B5 about an hour before bed. there is some research on this. That insomniacs are low of these 2 B vitamins. Thiamine B1 calms the body down and B5 is need for the sleep hormone. The research said it was especially prevalent in people that took ages to go to sleep or would wake up at 3 to 4 in the morning.

Zinc is also an essential sleep hormone I take this in the evening too. My ME/CFS doctor put me on melatonin too.

Liver likes the B vitamins.

Honeysuckle123 profile image
Honeysuckle123 in reply toKatherine1234

Oh that’s brilliant, thank you so much Katherine I’ll have a look.

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