Deteriorating

[Lsstewart]

My Dad has had a bad few days. Unable to get out of his bed. In a lot of pain with the acities. Unwilling to go into hospital with the fear that he will not get out again. He is gaining no sleep at all and is being sick. No idea where to go from here if a hospital visit isn't an option.

[AyrshireK]

He needs the ascites dealt with a.s.a.p. the fluid can become infected. If it isn't dealt with he could deteriorate really quickly. The fact he is being sick, unable to move and in pain does require pretty urgent, emergency treatment.

Have you got end of life plans in place? The BLT has a page all about planning for the future due to end stage liver disease. britishlivertrust.org.uk/li... I know it is horrible to think about but if there is no treatment available for Dad then the condition will in all likeliehood lead to a need for palliative care and end of life planning.

Hope you can get him to go to hospital.

Katie

[Hidden in reply to AyrshireK]

Hi , I agree with Katie. Could you get a Dr to come out, he mit be able to persuade him to go into hospital. You are both I'm my thoughts and prayers . Sending you both lots of love and hugs Lynne xxxx

[Hidden]

Hi,

We are sorry to read how unwell your dad is. Based on the information you have provided, we would also suggest that he is seen by a doctor as soon as possible. Could a GP come out to see him today? If not, maybe you could consider calling 111 and explaining everything including his liver diagnosis and symptoms.

Very best wishes

Trust1

[Lsstewart in reply to Hidden]

Thankyou everyone

I have called his GP and they are going to go out tomorrow however did inform me if he doesn't want to go to hospital there isn't much they can do. He was in a worse state than this the first time he had drainage done so I'm hoping if we can get him in for that it would relieve some pain

X

[Hidden in reply to Lsstewart]

We really hope they can help him. Thinking of you.

[Hidden in reply to Lsstewart]

Hi ls

Apparently when I was bad like that my wife rang 999 (unheard of for her - or me!) and explained the problem. They sent an ambulance in 15 minutes. It took three people just to pull me/push me down the stairs - I was stopping them with all my strength apparently. But they put my reluctance down to a massive HE episode I was having and got me to A& E pretty darned quick.

I knew nothing - still don’t- but apparently the Ambulance crew were really good and said they were happy to be called out for a “genuine case” 👍.

So it can be made to happen.

Good luck.

Miles

[Lsstewart in reply to Hidden]

Dad is walking around his flat a little today though needing a lot of rest. I dont think it's the same situation. Hes just sore. Doctor going out to his today but if he doesn't want to go to hospital it's his choice they said. It's like hes given up, hes worried if he goes into hospital he wont get out again. Though I'm sure he would hes fully with it in terms of his brain function just needs the acities drained.

[davianne]

Hello, Miles is absolutely right, call 999 and get him to hospital, to get his ascites drained ASAP. He needs medical attention NOW. Wishing you both well,

David

[Hidden]

phone 999 and get an ambulance

[lyn3]

Hi how is your dad now? did he go into the hospital after? how you doing???

[Lsstewart in reply to lyn3]

He wouldn't go into hospital and I'm going to respect that.

I've been sorting out finances etc. Very difficult times ahead.

[lyn3 in reply to Lsstewart]

I totally agree with you on the hospital part, if he doesnt want to go in then its his choice pointless in forcing him in , you force him to go in,you stay with him for hours on end for him to be seen and sorted as best they can, you get home exausted not just from the long hours of being there but the fight you have on your hands getting him there, all you want to do is sleep, and then wake up to going back to the hospital for him to say im signing myself out. So i agree 100 percent dont force him and respect his wishes. Its a scary place thinking you wont come out. Hard sorting out the finances especially if you have to do it alone, we are all here to give you support as much as we can. Keep us updated ok??

[Lsstewart]

*update*

I finally got my dad to the GP.

He had bloods done and has today been to see liver specialist. They have said he does not require draining at this time though is going for a further scan.

He has perked up and mobilising much better than when I posted this. Back taking his medication too.

I really thought we were at the end when writing this post I even went and sorted out finances.

Feel so much better thanks for all the support. Long road ahead though.

[ThreeSmiles in reply to Lsstewart]

Hi

Ahhh that’s nice! I think we all like to hear that sort of news 👍

Hope he continues to improve.

Miles