Hht disease (liver)

[jomana80]

Hi am Jomana and my husband Socrates was diagnosed with hht disease since 2015

In the age of 28

He bleeds from his nose since then

Any one knows a familiar case?

It's very rare here in Israel it's about 1/1000000 chance to happen

Because of the tests if disease back then in 2016 we found a very early stage of colon cancer

And he healed since then also with no chemotherapy

But still the bleeding is annoying and caused anemia

Thanks for reading my post..

[Ajo13]

They’ve been doing some tests on me recently because my pulmologist thinks I might have it. I had a negative echo bubble test so he said it’s a bit less likely but they aren’t 100% sure yet. He did tell me nose bleeds are a symptom. How was your husband diagnosed?

[jomana80 in reply to Ajo13]

With a liver professor in naharea hospital in North Israel by CT test to the liver and some symptoms as nose bleeding and genetic past and something on his tongue

Also in the CT looks like black spots first they said maybe a Good tumors then after MRI they were more sure it's something else it's Telangiectasia

Soooo it's bearable just be careful from anemia always take iron

Don't be a fool like my husband his ego almost killed him..

And use a tranex acid of hexacapron

Your hematologist will help you have this

You put it on a cotton bud and into your bleeding nose

It stop it in maximum 15 minutes

Sometimes a minute

But my husband was bleeding for hours a year before then he took vitamins and iron and back to hemoglobin 14 thanks to Jesus

Any questions? His Facebook is Socrates Mansour

Also the Instagram

My email is [e-mail]

You are most welcome 😘

[Hidden in reply to jomana80]

jomana80

We are sorry to read that your husband is unwell.

However, this forum is not a medical one and no one should make specific medication recommendations. Only a person's own doctor can advise them safely.

Many thanks.