Stopping early cirrhosis: I took care of... - British Liver Trust

British Liver Trust
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Stopping early cirrhosis

kuda123
kuda123

I took care of my liver disease as much as I can .Made every effort to make it reversible but it is progressing .Not developed portal hyprtension yet but insomnia is killing me.I cured my fatty liver this year ,no fatty liver detected on ultrasound .Normal ultrasound,Normal CBC,Normal LFT,Normal Endoscopy .Will be asking for a Fibroscan from my hepa.I still dont know which stage I am at?Is there any hope to atleast stop the progression?I had made so much changes in my lifestyle ,diet etc.I drink almost 3cups of coffee,liquorice tea 2 times green leafy veggies

15 Replies
oldestnewest

Hi,

I don’t have much experience yet so I am sure that someone with more experience will be along soon to offer more help. I wanted to say well done on improving your fatty liver - I have fat in my liver but am waiting to see a consultant. I have lost weight and now eat healthily and I know how hard it is to do so well done! What I don’t quite understand is if you have reversed your fatty liver and now have normal tests how you still have liver disease? As I said I have little experience so apologies.

I would suggest keep eating healthily and exercise and don’t drink alcohol if you normally do. What does your doctor say as they are best placed to advise you?

Sending hugs,

Owlie x

kuda123
kuda123
in reply to Owlie

My doctor is not concerned about my symptomes .I am having so much anxiety that I have advance liver disease because I have /had so many symptomes of it .The worst is insomnia ,it is killing me literally .

AyrshireK
AyrshireK
in reply to kuda123

Insomnia alone is not a symptom of cirrhosis. Insomnia can be caused by stress and anxiety amongst many other things.

Hidden
Hidden
in reply to AyrshireK

Agreed. As a chronic sufferer of anxiety I can almost guarantee your insomnia is being caused by your anxiety. Believe me I'd absolutely of died and gone to heaven to see results like you have. Going through this shite can give even a person without previous anxiety some post traumatic stress disorder. Try to relax if you can. If not please see someone to help you with that. My main use for alcohol that got me here was that I was treating PTSD with alcohol. So I do know how hard it can be to tackle.

Hang in There 😊

What is making you think your liver condition is progressing when you seem to be returning all normal tests? Your post contradicts itself saying you've cured your fatty liver and none is showing on ultrasound or any blood tests yet you say it's progressing. Have you had a diagnosis of cirrhosis - it's just that the usual progression of liver disease is Normal liver - Fatty liver - Fibrosis - Cirrhosis.

What did you feel (or have been told) has caused your liver ill health?

Katie

kuda123
kuda123
in reply to AyrshireK

All labs are fine .I have symtomes of cirrhosis of the liver might be because of fatty liver which I do not took care off.I do not passed decompensated stage yet but I was having loss of appetite ,insomnia which I am struggling now also. .

AyrshireK
AyrshireK
in reply to kuda123

If your ultrasound is clear and all bloods are normal you really do not have cirrhosis. If you had fatty liver before and your health and lifestyle changes have removed the fat from being obvious on ultrasound you are doing all the right things. You are no where near decompensated cirrhosis and loss of appetite and insomnia are present in so many other health issues - not lease anxiety which you also report.

If you continue to look after your liver it shouldn't cause you further problems and it sounds like you have no current issues with your liver.

Katie

kuda123
kuda123
in reply to AyrshireK

I heard that cirrhosis of liver can be missed by ultrasound and CBC.Two years back I had an abnormal LFT which is now in normal range after getting cured of fatty liver .What test should I ask from my hepa to rule out cirrhosis ?I had a history of alcohol abuse (4years)which I am ashamed off.I think I might have damaged my liver because of that .

I don't want to sound harsh but it sounds like you have health anxiety. If all your tests are normal it is highly unlikely that you have liver disease. Insomnia isn't a symptom of liver disease nor is anxiety. If you're so worried about your health it will affect your appetite. If you are so convinced that something is amiss I'd give up alcohol completely. One LFT being abnormal isn't anything to worry about especially if it is now perfectly normal. Try to get on with enjoying your life and maybe look into some sort of talking therapy. Where are you? I assume it's not in Britain.

Take care. Deb

Thanks

I am young and do not want to get into trouble .i dont want to die either .I will get a fibroscan to get this out of my head

Hidden
Hidden
in reply to kuda123

Kuda -if you come on here asking for advice we can’t give it, but we can recount experiences from which you can deduce advice. You really don’t appear to be taking note of forum members’ experiences, or am I misinterpretting your posts?

Miles

kuda123
kuda123
in reply to Hidden

No your are not misinterpretting my post.No one is a specialist here .Cirrhosis is a very serious issue to deal with..But I am having a lot of anxiety about my disease .During the past 6 months I had numerous LFT ,CBC endoscopies and ultrasound but no diagnosis yet.Even I told my gastro regarding my drinking habits during college days which might had contributed to liver disease but he is not ready to accept that .My symptomes an year back was pain and tenderness in right upper quardent of abdomen ,abdominal swelling,loss of appetite ,black stool (it happended only once I drank alcohol)its no longer after quiting alcohol.Recently having sleep disturbance .I really regret the damage I have done to my liver ....

AyrshireK
AyrshireK
in reply to kuda123

You never mentioned any of these symptoms before - are they still going on now that you have stopped drinking and started this healthier regime?

Cirrhosis would normally be seen on ultrasound (it alters the echo texture and shape of the liver and ultrasound would see it) and whilst it is possible to have normal LFT's even with cirrhosis it would be unusual to be displaying serious symptoms whilst bloods remain normal. Symptoms arise when the liver is struggling and a struggling liver will emit deranged LFT's.

A single set of out of range LFT's or a single incidence of black stool is not indicative of cirrhosis - black tarry stool due to cirrhosis is caused when you have internal bleeding from burst varcices or other part of the gastro-intestinal tract (its the blood that causes the discolouration) so unless you'd had a massive bleed out then it wasn't cirrhosis causing that particular symptom on that day. This kind of bleeding doesn't just come and go.

The upper right quadrant pain can be caused by other issues - has your gall bladder been checked for example.

We arn't doctors and only your doctors can give you proper answers but when doctors tell you something and back it up with medical evidence / test results etc. you can't keep challenging it although having constant pain isn't normal so you need to get them to identify why you are having that.

Keep up with the healthier lifestyle regime.

Katie

kuda123
kuda123
in reply to AyrshireK

Katie,Thaks for the reply

I quit alcohol 2 years back ...Recovered from 2 of my liver functions loss of appetite and abdomonial swelling .I have strict diet comparises of fibre rich grains with a lot of green leafy vegetables and 3 cups of coffee ..T

Hidden
Hidden
in reply to AyrshireK

Yea those symptoms would have been good to know earlier in this discussion.

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