Does anyone have any tips to help with the fatigue and tiredness? I can sleep for 8 hours a night but I wake up feeling like ive not slept at all! Living on black coffee at the moment other wise I keep falling asleep! Hard when I have to look after my 4 year old son. I try to go out for walks but it's becoming so much harder.. bones and joints are painful. Also my "tremor" or shakes is getting worse through my whole body.. worse in hands.. not flappy hands but shakes non the less.
Still waiting for my "urgent" ammonia level check appointment.... I want this nightmare to end already
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ktan49
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I so wish that I could give you the answer to this one. It remains my hubbies major symptom - even today he had a good nights sleep for a change but had his morning coffee at 7.30 cos we were supposed to be going out for the day but he immediately went back to bed and slept till 9am. Got up and had his breakfast and now he is back upstairs snoring away again. Must be really difficult when you have to try and function and have kids but sadly some days this is just the norm.
Weird thing is on his nights when he gets the bare 4 hours he functions better the next day than the nights when he's almost slept right through and of course nothing shows up on his bloods.
Katie
Ktan, I have no solutions as usual for me....
Just to say I usually only get 2 or 3 hours of sleep a night and then have to sleep in the day. And no it's not the sleeping in the day that causes me not to sleep at night!
After the T/P I still don’t sleep properly - consultant says its the meds and it will get better. Waiting.
Aches and pains disappeared for about 8 weeks but now back again. Odd.
Thanks for replies, much appreciated... phoned secretary today and the reason I didn't hear anything was because there was no urgent appointments available.... she said luckily someone else cancelled for 23rd November so I've taken that. Hopefully get some answers then! Anyone else had an ammonia level check and what it involves and result times? Cheers Karl
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