Feeling pretty tough today: And not sure... - British Liver Trust

British Liver Trust

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Feeling pretty tough today

Xenom0rph profile image
28 Replies

And not sure why. Yesterday I wrote of feeling crap too.

No shakes or sickness etc. Just not feeling right. Think I may have a bug but I have a constant dull pain under my ribcage at the right. Although I did cave to my daughter's request of a pepperoni pizza and hot wings so might be something to do with that.

Hope everyone is well.

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Xenom0rph profile image
Xenom0rph
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28 Replies

Hi

Me too. Feeling terrible today, don't know why,have more bad days than good. Take care Lynne

Bootandall profile image
Bootandall in reply to

Aw crap, I was genuinely happy for you Lynne, sounded like you were on a better path and having at least a few really good days. 😕

in reply toBootandall

Thank you. I was a bit down on but I'm ok now. I'm in pain constantly but will keep positive 😁 how are you feeling tonight? Take care Lynne

Bootandall profile image
Bootandall in reply to

Hi Lynne,

I'm having a hard time with depression, shingles and HE symptoms, which my family thinks is all an act. It's frustrating and frightening! Doctor upped the lactulose, wants to put me on an antidepressant. Sucks to be me. 😒

in reply toBootandall

Hi

I really feel for you. I'm lucky to have good support. Perhaps you could show your family some of the posts on here, it might just help them to understand. Please take care. Love and hugs Lynne xxxx

in reply toBootandall

Shingles can’t be an act and no-one would want to act out HE symptoms ☹️☹️. Poor you boot, your family should really be giving you their full support in your “hour of need” - not doubting you ☹️.

🤞🤞 that your family starts Doing the “right” thing soon. I wouldn’t have survived without the support of my family, that is for certain.

Good luck!

Miles

Bootandall profile image
Bootandall in reply to

I think they just don't understand it. I tried explaining, it feels like I'm getting off a carnival ride, you know the feeling of disorientation when the ground seems to shift underfoot? They just want the old me, full of energy and plans, not the current me, who falls asleep at the drop of a hat and can't form coherent sentences.

in reply toBootandall

HE 😕👎

alfredthegreat profile image
alfredthegreat in reply to

Sending you a virtual hug Lynne. Hope you get some decent sleep tonight. At least it's cooler and so that may help :-)

in reply toalfredthegreat

Thank you, Alf. I was a bit down but I'm ok now. I'm always in pain but will keep positive and be the glass half full person. How are you and yours doing? Take care Lynne

alfredthegreat profile image
alfredthegreat in reply to

Not too bad thanks Lynne. Wish that they could get your pain under control. You take care too :-)

in reply toalfredthegreat

Thank you, so do I!! Take care e

in reply to

Sorry, lynne not e!!

alfredthegreat profile image
alfredthegreat in reply to

:-) :-)

Xenom0rph profile image
Xenom0rph in reply to

Hope you're well!!

in reply toXenom0rph

Thank you. Not brilliant but will keep positive. Thank you for asking. How are you feeling tonight? Take care Lynne

Xenom0rph profile image
Xenom0rph in reply to

Bit better. Updated in a post further down. Docs have told me to stay off my blood pressure medication until I feel a bit better.

in reply toXenom0rph

Ok. Make sure you phone Dr if you feel no better. Take care Lynne

Bootandall profile image
Bootandall

Hi Xeno,

I'm very sorry to hear you aren't feeling so hot. Are you getting enough sleep?

Have you ever had your gall bladder looked at? I think you should let the doctor know you are still struggling, she would be able to suggest next steps.

Xenom0rph profile image
Xenom0rph in reply toBootandall

Hey. Feeling a bit better but then I decided to try and track down an electrical problem in my car. Who knew cars have fibre optic networks. So that stressed me out.

Feeling very anxious and very snippy with my wee girl which is no good but lots going on with family. My MIL is days away from her final breath so everything that comes with that isn't helping but in the grand scheme of things I'm in much better shape than I deserve to be.

I have mentioned my fall bladder before but it was always glossed over. Ultrasounds etc haven't shown anything but I guess they won't find what they aren't looking for! I'll push for this a bit more

I'm taking dihydrocodeine for pain so I'm sure that isn't helping but I don't handle this sort of pain well, pain that I can't "see" if that makes sense.

Tomorrow is a new day!

Peace!!

Bootandall profile image
Bootandall in reply toXenom0rph

🌈☀️🌞

Sorry, cars are a big PITA sometimes aren't they?

Dealing with MIL dying is a good enough reason to be upset, throw on the car, the stomachache, the liver disease. Arghhh!! Hang in there buddy. Give your girlie a hug and extra kisses.

Xenom0rph profile image
Xenom0rph in reply toBootandall

Thanks! Just realised I didn't answer your question fully.

Sleep is a nightmare. Ive never been a great sleeper and was THE primary reason that I started using alcohol more heavily. But we know how that goes.

Bootandall profile image
Bootandall in reply toXenom0rph

I've been flipping my days and nights, and understand sleep problems very well. I'm American, and it is barely 7 p.m. now, but I am struggling to stay awake. I will usually sleep for an hour or two, then up all night. But I am going to try to get through it, and head to bed earlier tonight.

in reply toBootandall

I hope you did boot. And then all you have to do is sleep. Simple isn’t it. Not ☹️. But I really hope you did manage It when you wake up in 6 hours time 👍

Miles

Bootandall profile image
Bootandall in reply to

I went to bed early and now it's 5:30 a.m., a little too early to start making noise in my house. I am still a bit disoriented, going to try to get a little more sleep.

Highflying54 profile image
Highflying54

Hang in there! I was feeling so rough over the weekend then some respite yesterday so hopefully the same will happen for you. Take care

Marian

Bjw7 profile image
Bjw7

I feel you Boot, I'm always up n down few hrs here and there. And that is with a sleeping pill. I also take a nap during the day. I also live in the USA. I never realized liver disease has such an effect on the body. I'm always exhausted, no energy. I despise it.

Marydel63 profile image
Marydel63

Also feeling like crap pain right upper and right side nausea no appetite and vomiting like once day when nausea just hits me. I had been sick a few weeks ago pneumonia then GI bug. Just so tired and nausea I have compensated cirrhosis and my labs are good. No gallstones. Just reading everyones feeling like crap post so figured I would vent here since its hard not feeling well with kids around and dont want to complain. But know I can complain here. All I want to eat is cream rice cereal it doesnt seem to bother me.

Ok enough of me complaining.

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