Question for the post transplant people

[Will3]

Hi all, I hope everyone is as well as can be expected.

My question...does the day ever come when you go a whole day without thinking that you’ve had a transplant apart from the obvious scar

I’m only early days at 7 months but still every day I think that feels weird or that hurts a bit.

Thanks for reading

Will

[RodeoJoe]

I can certainly testify that definitely possible. I'm nearly 4 years post transplant and although feeling much much better probably wasn't 100% until about a year in. Couple of months ago I did a 65 mile charity cycle ride, and I certainly wasn't thinking about anything other than my legs

However I still get a few twinges around the liver. I started yoga and Pilates recently, I have temporarily stopped but I did get some really nasty twinges around the liver during some of those stretches. Also if I bang my scar it's not very pleasant.

[Will3 in reply to RodeoJoe]

Thanks Joe, you made me tired just reading about that bike ride !!

Every little twinge and ache I get I put down to the transplant when in reality at nearly 50 i’m Going to get them anyway.

Glad you’re doing well and thanks for the reply.

Will

[Graham27]

Now 13 months post transplant. I would say it is only really in the last 3-4 months I turned the corner. Forced myself to keep myself busy, either exercising or doing projects around the home. This gave me a far more positive outlook and do not think about it so much about it now. I do get pain in the scar and liver area if I over exert myself. I now wear a post abdominal surgery belt when doing physical work or exercise and that helps out tremendously.

[Paulwil]

I am nearly 11 months post transplant and have had a good recovery barring pneumonia in February. During the last few months I have been a lot fitter and also mentality better.

I have days now where I don't really think about the transplant to any great extent. I suppose there is less impact on day to day life, I take very few meds, only 3 monthly clinic visits and much less physical discomfort.

I hope every day brings a little improvement to your daily life.

Best wishes

Paul

[Will3 in reply to Paulwil]

Hi Paul,

Thanks for the reply, I had a read through your posts and I see you asked a similar question at 5 months post t/x, it seems your journey is very similar to mine.

I felt great around the 3 month mark, brand new. Just a bit achy and sluggish now but I guess were in it for the long haul and i’m Sure my donor wouldn’t want me moaning.

All the very best

Will

[smp071266]

Hi will

I’m 7 months down the line too and find it is pretty much the first and last thing I think about each day. My main thoughts are about how bloody stupid I was and the regrets I have for putting my family and friends through a very traumatic time. I am back at work now (5 weeks) so am fairly distracted during the day and have a teenage daughter to contend with. I developed CMV and am now anaemic so am dealing with that so I do have a constant daily reminder but, you know what? I’m here to tell the tale. Let’s stick in - we’ll get there 😁

[Will3 in reply to smp071266]

Hi,

Thanks so much for the reply, your story seems to mirror mine. Judging by your comments about friends and family i’m Guessing you’re here like me due to alcohol ? I get that guilt too everyday.

I haven’t returned to work yet as I lost all that pre transplant when drinking - job, flat, partner etc. I also have a teenage son living with me and that does keep you busy. I’m glad i’m Not the only thinking about the transplant daily.

Warmest wishes to you.

Will