New to the forum - Mum is in UCLH with HE

[NeilR]

Hi all - my poor Mum is currently in UCLH with HE. She has an autoimmune liver condition which first concurred 15 years ago and the original cause was never known, she has cirohssis (not sure how bad) and over the past 15 years she has been pretty well - 'flare ups' every year but with rest she would recover and get back to her normal. Her platele count ha she been about 50-60 over this time and she has seen her consultant every 6 months. About 3-4 weeks ago she started to get light bleeding from the nose and gums, and she got progressively worse and ended In A&E last Tuesday with a platelet count of 4. Took a while to get to th the diagnosis and we were rushed from local hospital to UCLH as they suspected TPP. This is now ruled out and they believe she has HE. She has deteriorated hugely since Sunday night when she was a little confused but could eat and drink and we had a chat last thing at night. Yesterday morning she did not really wake and could not drink or eat and the heptologist said she just needed laxatives to help her excrete the toxins. She would respond to nudges though and mutter one or two words, She is sadly worse again this morning and cannot say anything and we cannot stir her at all. We are waiting to see the liver team now but the treatment seems so passive when she has gone downhill so quickly. The ICU doc just said she has a GCS of six. She also has a blocked renal vein so we are not sure if a transplant is even an option. So many unknowns. Any advice from anyone please. So very sad.......

[Gemma68]

I'm so sorry to hear about your mum, I can't give any advice I'm afraid but I'm sure some of the more knowledgeable people will reply, just wanted to say hope she gets better soon.

[NeilR]

Thanks Gemma

[Hidden]

Hi Neil,

We are really sorry to read how poorly your mum is.

You may find our publications on Hepatic Encephalopathy (HE) and also Cirrhosis of the liver useul to read for general understanding, prior to the meeting with the liver team.

britishlivertrust.org.uk/wp...

britishlivertrust.org.uk/wp...

We hope you find the forum a supportive place to visit and send you our very best wishes,

Trust1