What happens nest

[jules45]

Hi everyoñe, ßàw my hepatoloģist yesterďày and am being referred to Birmingham for transplant assessment. What should I expèct! Felt emoþional yesterday. Any advice apprèciated, thanks

Love Julie x

[Hidden]

Hi Jules, I can't offer any advice,I just wanted to say that I have read your posts and I think you do amazingly well and all alone.

You probably will be worried about the unknown but this could be the beginning of a new life for you.

[jules45 in reply to Hidden]

Thankyou àďriàñ, ĺòvè Julie xxxx

[AyrshireK]

Hope it all goes well Julie, my personal thinking on your case is its about blooming time that you were assessed.

Not sure on how the process works at Birmingham but they will assess you really thoroughly to see (a) what your current condition is and whether transplant is the appropriate next step and (b) are you fit enough to undergo the procedure and recovery. They will give you scans, breathing tests, heart and lung tests and more to make sure there arn't any other illnesses present that could stop you going forward for t/p.

Wishing you the best of luck, Katie x

[jules45 in reply to AyrshireK]

Þhànkyou Katie, you are ßo kind to everyone , love jùĺie xxxx

[carole-shaw in reply to AyrshireK]

Hi I had my assessment done a Birmingham in September last year they do lots of tests while u are there for 2-3 days we got a b&b and stayed over. U see different medical professions who will look after you hope this helps xx

[jules45 in reply to carole-shaw]

Thank you, I was wondering how lònģ it took and whether your an in patien so I'll book a premier inn nearby

Thanks for help, love Julie xxx

[Millie09]

Hi Jules!!! Fantastc news. Im under QEHB, very similar process to all other assesment for going on transplant list. Let me know when your appointment is and i will go with you if your on your own hun xx just PM me . Or drop me a message if you still have my number xxx

[sunnysmile in reply to Millie09]

Aww Millie that is so lovely of you. You all overwhelm me on here. Wonderful

G.

p.s. How do you PM on here, for some reason I can't find how to!

[Millie09 in reply to sunnysmile]

hi sunnysmile, well i live in birmingham, live on my own and i know how daunting it can be even going for a check up .😏.as jules is not local i wanted to let her know im here if she needs support. Oh to pm anyone press on to the person's profile pic and it will allow you to follow them and send a private message. Hope you are feeling ok today .. linda.

[sunnysmile in reply to Millie09]

Yeah I am good. I am Manchester and would do the same. Hate people feeling scared. x

[Millie09 in reply to sunnysmile]

Oh thats good! Yes .its nice to be nice x

[Jans1953]

Hi Jules. I've got my transplant assessment date at the end of this month at the QE. Its officially an out patient appointment but from 9am till 4pm. I'll let you know what happens when I get it over with. I'm really anxious too xx

[Millie09 in reply to Jans1953]

Good luck! Hope all goes well.

[jules45 in reply to Jans1953]

Þhank you, please let me know whàt happens,,love Julie xx

[carole-shaw in reply to Jans1953]

U usually have to go back for 2 days after ur initial assessment

[Hidden]

Hi Jules

It is about time they sorted you out!!

Good luck Jams, hope it all goes well. Love and hugs to your all. Lynne xxxx

[jules45 in reply to Hidden]

Thanks lynnè, love julie xx

[Hidden in reply to jules45]

You are very welcome. Love and hugs Lynne xxxx

[readie56]

The only assessment tests that are physically demanding are the breathing test (lung function) and the exercise bike fitness one. Keep as fit as you can and try like hell on the day. I was told these are must pass so I drove myself as hard as I could.

The others are passive, CT enhanced scan, GAS arterial oxygen blood test

Etc. If you Google ' liver transplant assessment test's' there is a useful item listing the tests.

The very best of luck and if you can take someone along for support & encouragement.

John

[jules45 in reply to readie56]

Hi John, I will Google whèn I'm brave eñough, love jùĺie xxxx

[Graham27]

Pretty much a year ago to the day I was assessed at Edinburgh Royal. basically you are assessed mentally and physically to ensure you are fit for a transplant over 5 days. As per an earlier post the must pass is the bike fitness test. I actually did fail one of these tests as my condition was crashing quickly and on oxygen. However my lifestyle was considered and the fact I had been building a house 3 weeks before I was accepted. I cannot deny the final day is an emotional one, when you get the verdict. Others on the same assessment were rejected because of health related issues or had admitted to taking even one drink in the last six months. Very, very strict about alcohol regardless of your condition, if alcohol related or not. That is not to say you would not get the option for assessment at a future date. I have now had my transplant. Felt better the moment I woke up.

[jules45 in reply to Graham27]

Thankß Graham! I will keep you posted, ĺòvè Julie xxx

[chell1704]

My Hubble had his transplant at QE at the beginning of April. They are fab. The staff at assessment centre are brill. You'll have a consultant appointment for them to agree to put you forward. Then it's a 1 day then 2 day assessment then they decide if you are listed. They continue to monitor and support you while you are on the list. It's a warm welcoming place and everyone makes you feel at ease. Please ask if you want to know anything else.

[jules45]

Hì cheĺ! I've heard birmìnghàm is fab so I'll bè in the best plaçè? Thañs for your adviçe love julie xxxx

[3261]

Hi Jules, I’ve only just joined the group and your post was the first I’ve read. Have you had your assessment yet ?

I’m 9 yr post liver transplant at QE Hosp.

[jules45]

Hi! I'm back at Birmingham 28th for second visit when I should find out if I'm goinģ to be assesseď or not so thankyou for ýoùŕ mèssage xxx

[Danisleigh]

I hope it all goes well for you. My son had his transplant at the QE in February this year but had his assessment at the children’s hospital as he was 16 so it’s probably very different. The QE was a lovely hospital though and I will be happy for my son to transfer there when the time comes x

[jules45 in reply to Danisleigh]

Hi, thank you for your reassurance about QE, I've been watching a transplant program but that was at Freeman hospital up north and i wonder how they compare, once again, thankyou, Julie x