I’m new here. Was diagnosed with small duct psc and IBD in January 2016. Has anyone else got this condition? For me the fatigue can be terrible at times. I spent most of Easter sleeping but sleep doesn’t relieve the tiredness. It’s really weird feeling. There’s some dizziness and brain fog too. IBD is under control with 2 mesazaline tablets per day. I also have episodes of eczema flare ups that I have never had before. Luckily I don’t have any major itching associated with PSC, just the eczema which steroid cream helps with. Also have developed tinnitus for no apparent reason. Literally I would have said I was healthy in 2015 and then everything went south. Had great care from the Royal Free though. Top hospital for Hepatology.
Any one else have the small duct psc?