So my liver went from decompensated to compensated. My 20% of good liver is doing 100% of my liver now. That’s fine but is it really compensated? I have banding for the GI bleeds, pills and a low liquid intake to stop the liquid retention. I take drugs to stop the HE. So is my liver really compensated or not? I feel more crap now and spend more time in hospital now than when I was decompensated.
Strange question?
Brett
Damn I don;t know much about cirrhosis but reading this i am really praying i dont have it. fatty liver is enough to contend with I am sorry your in this situation but I did find this.
hepatitisc.uw.edu/go/evalua...
How spooky is that??? I was reading that yesterday. That’s what made me ask the question on here lol.
well buggah me.
Haha. Cheers for looking though mate. I’ve got a doctors appointment on Friday. I will tell him to refer me to the liver transplant docs in both Sydney and brissie to see if I can get on the transplant list.
Fingers crossed. I bet he won’t though. Mean bloody doctors lol.
Cheers mate,
Brett
If you are sick you have a good shot. Age and your lifestyle also comes into account.
Hi Brett not an answer to your question but i have a question if that's ok? How do you know you have gone from decompensated to compensated? Do the doctors tell you from tests? I was just curious thanks
Both my liver doctor and my GP told me from blood tests, CT scans etc
Hi Brett - i'm the same I've gone from decompensated to compensated, I did ask my consultant to confirm this about 6 months ago and he said basically the same as you - the remaining part of the liver that hasn't been affected is doing 100% of the work.
How regular are your blood tests? I get mine done every 3 months and an USS every 6 months - i did have a scare last week as i'd basically felt like cr*p for 3 weeks. The Dr agreed that it could possibly have gone back to a decompensated state however after blood tests it was my reaction to a very mild viral infection which having cirrhosis hit me a lot harder than those without this condition.
In terms of the transplant list i'm not sure how it works in Australia - Im in the UK and I was put on the transplant list initially but after 9 months I was removed as my condition was compensated. I think if your test results etc are saying you're compensated you will struggle to get added to the transplant list.
I don't know if thats helpful at all but it seemed like we are in a similar (ish) situation! 🙄
I get blood tests usually once a month and see my liver doctor every 3 months and see my GP almost every Friday. I get the camera down my gob every 6 months and the other scans every 6 months and every time I get admitted to hospital.
Phew! That’s a lot of tests and doing tests and waiting for results. I must have had some sort of life before cirrhosis? I can’t remember lol
Cheers,
Brett
Thanks for that. It seems that you have to be really ill but not too ill to go on the register.
Decompensated to compensated
Fibrescan score 29
Compensated or Decompensated?
My story so far. Hi I’m new!
