Worried: Hi After being on list for... - British Liver Trust

British Liver Trust

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Worried

1football profile image
6 Replies

Hi

After being on list for 14months I now find myself getting petrified of the transplant itself can’t explain why just am anyone else felt like this

Huw

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1football
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6 Replies
jojokarak profile image
jojokarak

Totally understand and normal emotion most of us experience... Even the first call I had I fell to pieces I was even telling them I didn't want it I waited 8 hours shitting myself until they told me it had gone to someone else... But the second call I got I was a lot calmer the thing I realised is if I didn't go for it I was going to die pretty soon anyway and why not go for it ... Just talk about it on here to loved ones, friends get it off your chest it will ease your anxious feeling and believe me it's definitely worth doing even from the second you open your eyes you feel the intensity of it and the surge of energy running through every vibe of your being x

h0b0 profile image
h0b0

Hi. I'm only the partner of a transplant recipient. When the call came I WAS THE ONE that went to pieces. ! After the op my partner said that he kept calm because transplant was " better than the alternative ". We had never discussed this as we never realized just how mill he was. We don't look back now ...nearly 2 years post xplant.xx

Kate50 profile image
Kate50

Yeh totally understand, the first call I got after being listed came while I was shopping and I absolutely froze, just stared at the phone ringing in total panic, turned out it was a call from the dietician haha, but I found I went through a range of different feelings and fears while waiting and I only waited 10 weeks so I can only imagine that you are thinking you have been waiting so long that your call has got to be soon, it is a very scary time and life yourself I was terrified but to be honest it is no where near as bad as your imagination lets you think it will be, good luck and I hope you get your call soon 💝

Barnetaccounts profile image
Barnetaccounts

Totally understandable feeling and emotion. You know my story, but given my time again I wouldn’t hesitate. Any major procedure must be given total respect, not like me who always approached things as if I was going to the dentist. The more you verbalise your fears the less power they will have. A transplant is not offered to anyone whose life will not be extended by having it. Occasionally things don’t quite go to plan as I know only too well. But the raft of tests we go through mean that even when things go wrong, we are strong enough to come out the other side. Keep strong.

Ray

Kristian profile image
Kristian

Well hasn't today's call made this become a profound post, lol. Good luck again and hope all is good to go.

1football profile image
1football in reply to Kristian

It has indeed can’t believe it

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