Worried

[PeppyPo]

Can some please explain these results to me just had a ultersound and i feel like they seen somthing on the scan am so worried i have PBC .. or this results bad or they high my anxiety is just killing me .

[AyrshireK]

Although you arn't meant to put results up for comment & admin will probably jump in at some point. What is clear from those is that your ALP is normal, and you are negative for AMA (Anti Mitochondrial Antibody) these are two of the things that would appear to rule out PBC.

A definitive diagnosis of PBC is established in a patient who has all three of the following:

- Cholestatic liver tests (alkaline phosphatase and ggt elevated more than ALT and AST).

- AMA positive at a titer of greater than or equal to 1:40.

- Diagnostic or compatible liver biopsy.

Only elevated things are your GGT and ALT - from reading back you have a previous diagnosis of fatty liver disease plus diabetes and other underlying conditions.

Doctors may well have to do some further follow up to see why your inflammation markers are raised.

Katie

[PeppyPo in reply to AyrshireK]

Thank you very much .. i have been trying to ring my GP she was ment to ring me back but 5 times she said she would ring be back i just wanted her to explain what results mean! I have really bad anxiety normally on meds for that been told to come off them untill figure out what's up with liver so am a little all over at moment i been waiting of 2month it like having a dark cloud over me

[Livershy5 in reply to PeppyPo]

Hi, I feel the same. I have had an ultrasound scan and been told I have a cyst on my liver and signs of Fatty liver disease. The receptionist told me this but my Doctor is on holiday until middle of June so can’t get definitive results 😫 so scary.....

[PeppyPo in reply to Livershy5]

Hi am so sorry to hear that your going through somthing similar 😢 the waiting is awful ! .. the fact that there ok to let you wait middle of June i would take that as a positive thing i think if was something serious they wouldn't wait they would get another doctoer to call you.. i have a telephone appointment tomorrow am hopeing he can see results and everything fine the worrying got me ill... i hope everything gose okay for you please let me know x

[Livershy5 in reply to PeppyPo]

Yes, I hope you’re right......the waiting is awful.

Good luck with your phone appointment. Let me know how you get on too.

[PeppyPo in reply to Livershy5]

Hya

Hope your doing ok ? I had my phone call today and i have fatty liver doctoer told me was because iam diabetic and its really common he didnt seem to concern.. i also have an enlarged spleen he didn't seem to concerned about that either just said i had to repeat bloods in 6 weeks

I hope every gose ok for you x

[Livershy5 in reply to PeppyPo]

Well that’s good he’s not too concerned and at least now you know what you’re dealing with and your anxiety should lessen. I’ll have to keep waiting. I’ll let you know when I know . Keep in touch.

[PeppyPo in reply to Livershy5]

Hopfully you will not have to long to wait .. the waiting is the worst part the feeling of being in limbo.. yes please let me know how you get on best of luck x

[Livershy5 in reply to PeppyPo]

👍

[Hidden]

Welcome to the forum where you will be able to get advice and support from others with experience of liver disease. However, this is not a medical forum and none of the members are qualified to diagnose or give specific medical advice.

Users are advised to NOT post test results, scans or photos and request an interpretation from other members. This is clearly stated in the guidelines to both this forum and Health unlocked. Test results vary according to both the individual’s whole health and the specific laboratory / medical team analysing the results. To avoid misinterpretation and undue concerns, results can only properly be understood by a qualified medical practitioner with full knowledge of your unique medical history and circumstances.

Please don’t be discouraged from using the forum as there are members with a great deal of understanding and knowledge of living with liver disease as a patient or carer. They will be able to give you the benefit of that experience with understanding and empathy that can only come from those with first hand involvement.

On the British Liver Trust website you will find a great deal of information about liver disease / health from trusted sources.

britishlivertrust.org.uk

Can you perhaps call your GP about your results today?

Keep us posted.

[Kristian]

Looks like you've already had the "dont post test results" message, lol.

None of us here are medically qualified so nothing we say should be taken as advice in any way. However, Katie has given you some pretty good interpretation already and I would concur with what she has posted. If there was PBC then I too would've expected to see a rise in ALP which fortunately doesn't look to be the case.

You also have a raised CRP, which can be a general indicator of inflammation.

You're clearly already an interesting patient for your medical team with few conditions they are trying to manage. Its not unusual in those cases for some medications to be a little disagreeable with the liver. It may well be as simple as that, but I'm sure your medical team will investigate that further.

Hopefully it will be something that simple. Good luck to you.

[PeppyPo in reply to Kristian]

Thank you so much for commenting am really greatful for the replies.