Pancreas problems

[Plaingirl]

Hi, I was diagnosed with decompensated cirrhosis & with meds & diet have improved greatly but in the past few months have had unbearable pain between my shoulder blades. Had an MRI & they picked up two nodules on my pancreas. I'm waiting to see consultant but has anybody had experience of this?

Thanks.

[sheri44]

hiya i had a liver transplant in 2016 for chirrosis non alcohol related & portal hypertension. I now have pancreatitis. They thought it was severe gastritis I've had many biopsies but its pancreatitis and its hell. Pain is horrible. Can't eat. I'm waiting to see the consultant. Sorry they found nodules. I need another MRI. I'm not much good to give u advice but ur not alone. Hope u get sorted quickly or someone can give u advice. Good luck 🍀 xx

[Plaingirl in reply to sheri44]

Thanks for your reply. I've been throwing up since 2.35am & its now 13.37. Don't know if its a bug, my liver or my pancreas! I know what you mean about eating tho as you either end up being sick or in agony. I can't even stand for more than 10 mins without it feeling like somebody's ran into me with a truck. Hope you get sorted soon xx

[sheri44 in reply to Plaingirl]

oh hunny i hope you have improved? I hope it was just a bug and not anything else. Please let me know how you are. Sorry i replied late not felt good either 😞 flu 😷 and feeling really sick. I've got a CT scan week on fri to see what's happening with my pancreas at the moment. That has come through within a week so impressed for once. Really hope your ok xx

[Plaingirl in reply to sheri44]

Hi sheri44, is your flu any better? I'm glad they got you in quick for your CT next week & I hope all is well with it. I just wish they'd hurry up like that with my consultants appt! Keep strong xx

[vulnerable in reply to sheri44]

Yeah I had 1st episode of pancreatitis in Oct 17. Excruciating pain. Had gallstones too. Had an ERCP done & biopsy coz found nodule on pancreas. Was benign thank hod. They’re planning to treat by surveillance annually. Hope this gives you done reassurance xx

[Plaingirl]

Just got back from GPS & he's confirmed pancreatitis. My MRI shows my portal hypertension has subsided & my liver looks a bit better but prominent lymphnodes are seen in the periportal & peripancreatic region. They haven't grown since my MRI in sept but are "reactive". It also shows my gallbladder is distended. My recent bloods show my Amylase level at 179. He told me not to worry & wait for appt with consultant. Thanks for all your help x

[vulnerable in reply to Plaingirl]

Good try not to worry. Did you have symptoms with the Pirtal hypertension? If so, would you mind sharing with me. I don’t feel great today & am wondering is it my Portal Hypertension or varicies or both?

[Plaingirl]

Yes vulnerable I had ascites and had to have 5 drains between 10/16 & 02/17. Thankfully it calmed down when my body got used to the spironalactone & I'm only on 50mg a day now. Thankfully I haven't had any varices yet but have got gastropathy & vascular lesions. In which way are you not feeling great? Xx