Gilberts Syndrome

[Annwoodhouse]

Hi I was diagnosed with Gilberts Syndrome about 15 years ago when I was in my early 30s. Doctors say there are no symptoms other than occasional jaundice from raised bilirubin. I'm not convinced

[AyrshireK]

The British Liver Trust has a page all about Gilbert's Syndrome and it might shed more light on the condition for you. Page is at:- britishlivertrust.org.uk/li...

If you are symptomatic and concerned you should ask your doctor to refer you to a specialist.

Katie

[Annwoodhouse in reply to AyrshireK]

AyrshireK thank you for your reply. I'm having various tests with my doctor at the minute and am waiting for a scan on my liver as I have right abdominal pain and a bilirubin level of 49

[Mattiesko in reply to Annwoodhouse]

I was diagnosed two years ago. I've had abdominal pain and nausea and digestive symptoms but doctors claim it has nothing to with GS. Reading GS patient forums, these seem to be very common even though doctors don't accept them as real symptoms.

[Annwoodhouse in reply to Mattiesko]

I know what you mean. Seems too much of a coincidence that so many GS people have similar symptoms. A disorder that affects the way your liver processes things would surely have an effect on your body in other ways. Wonder if any doctors recognise it!!