me : hello all -new member here --ex... - British Liver Trust

British Liver Trust

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ayjay64 profile image
11 Replies

hello all -new member here --ex alcoholic , i may be able to give advice as i've been thro the mill as others here have, my liver and kidneys are poorly or "injured" as they say they drained 19 ltrs of fluid from my tum initially, it's zero now so thats good! cheers---ayjay

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ayjay64 profile image
ayjay64
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11 Replies
mrsmerlin profile image
mrsmerlin

Hi,

Welcome to the club nobody wants to join.

I'm sure your experience and advice will really be appreciated.

Rita x

matt137 profile image
matt137

Welcome Ayjay. Good bunch here

Welcome to the forum,

We hope you find it a supportive place to visit,

Best wishes,

Team BLT

Ninie profile image
Ninie

Hi my husband often has HE and needs to be hospitalised and everytime he has trauma such as a fall or so, it gets worse. The thng that worries me is the visual hallucinations that he has permanently. There is always people in the house etc. Is there medication for these hallucinations. Another thing he is so depressed. Regards to all Celia

AyrshireK profile image
AyrshireK in reply toNinie

Is your husband on treatment for his HE? Should be on LACTULOSE to help him remove toxins via the bowel (3-4 bowel movements a day is recommended) also in conjunction with lactulose consultants should prescribe RIFAXIMIN - an anti-biotic which also helps to remove toxins.

I've not heard any specific medication to deal with hallucinations but the above are prescribed treatments for HE.

Some people have found that eating less red meat or even following a vegetarian diet help with reducing hepatic encephalopathy symptoms.

Katie

ayjay64 profile image
ayjay64

i take lactulose to keep my blood un-infected--very important, as poo in your bowels can infect the blood and the blood can cause the brain problems---andy

Ninie profile image
Ninie

Thank you for your replies. He is on lactulose at home and only when he is admitted in hospital

dr gives antibiotics. All the best to everyone.

AyrshireK profile image
AyrshireK in reply toNinie

Perhaps you should ask about the rifaximin too, it'll be a hospital prescribed thing first but then should be available on repeat prescription from GP. Lactulose & Rifaximin combined is now the recommended treatment for HE.

Katie

7265sunlower profile image
7265sunlower

that is brilliant ajay carry on with the good work proud of you

7265sunlower profile image
7265sunlower

well done Ajay keep it up so proud of you

hi,ayjay ive been dianosed hcv they said it was down to drink now i am going for a ct and ultrasound in two weeks time.after afp levels have risen which is a tumor marker.i am glad to hear your off the booze and welcome you to the club i know what stigma your going though but be strong,they put all my complaints down to booze,now its all three booze,blood pressure pills and contracking hcv early in life. hope to hear from you soon.jimmy

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