Cirrhosis and me.: Hi all been on here a... - British Liver Trust

British Liver Trust

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Cirrhosis and me.

bluemoon2 profile image
11 Replies

Hi all been on here a few times as bluemoon 1,got a new fangle dangel tablet,more confusion for me,lol.Well here as bluemoon 2,1 or 2 it'l be me,still stable with my cirrhosis,gone from decomp to comp off transplant list,just suffer with mild encepolopathy,ataxia,peripheral neuropathy, swelling of legs and that god awful itch,well thats me sorry to bore and sound a pain,hey I keep on smiling 5yrs without alcohol now.

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11 Replies
Brett11 profile image
Brett11

Same here. Well, only 19 months sober for me. Is your ataxia Wernicke's encephalopathy?

Cheers

Brett

bluemoon2 profile image
bluemoon2 in reply to Brett11

Am I right in thinking wernickes can be hereditary where as mine is due to alcohol,I know my frontal lobe took a beating when I was withdrawing.

Brett11 profile image
Brett11 in reply to bluemoon2

I think they are both hereditary or alcohol related. Mine was due to alcohol. I fried a bit of my brain at the back close to the spine that affects my gait and balance. They call it the drunk disease over here. Vitamin B1 and my walker helps me every day. There is still no known cure for it but overdosing on B1 every day seems to stop it getting any worse.

Cheers,

Brett

bluemoon2 profile image
bluemoon2 in reply to Brett11

Yeh understand medical term here is ataxia,I have a bad gait and shuffel,if I turn quick I lose balance which normally means I end up falling over,great fun.

bluemoon2 profile image
bluemoon2 in reply to Brett11

Nt,take care.

Millie09 profile image
Millie09

Hi bluemoon, great news! Very same symptoms as myself including insomnia, lethargic etc.. well done on your sobriety!.. keep going..

bluemoon2 profile image
bluemoon2 in reply to Millie09

Cheers forgot about the insomnia lol,thats the encepalopathy heres one circulation not to good either suffering a leg ulcer of 2 years now,nasty.

bluemoon2 profile image
bluemoon2 in reply to bluemoon2

Nt take care.

Millie09 profile image
Millie09 in reply to bluemoon2

Oh yes! The great HE! I had it bad Saturday..didn't know what i was doing. Ouch! Nasty.. Hope it clears up for you.

Marydel63 profile image
Marydel63

Congrats on 5 years!!!!!! Itching can be unbearable!!!! Decomp to comp!!!!! Congrats on that toooooooi!

Peppy05 profile image
Peppy05

Congrats on being sober for 5 years, I'm on my 3rd year being sober take care.

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